Caring with someone for cancer

My husband was disagnosed with a stage 4 tumour at the base of his skull in January this year, he was previously in remission from throat cancer. The diagnosis has hit us both hard and the reality is I will lose him eventually. He was hospitalised two weeks ago as they thought the cancer has spread but the scans showed it had not. He literally went into hospital one man and came out a frail week man. Reality has hit hard and I am in permenant state of anxiety wondering how I will ever hold down a full time job and tend to his needs. They have decided to stop chemo and change it to immunotherapy which is positive but don't know how I will find the strength to deal with it. This man is my whole world. How do people manage? How do you find the work/life/carer balance? To watch his pain and weakness breaks my heart every single day he has always been my strength in difficult times and now I'm losing him to this dispicable illness. 

Parents
  • Hi,

    I am so sorry to hear everything you and your husband are going through. Just never give up hope and always be that rock for them. My wife died of CNS Lymphoma just 6 months ago after a 10 month battle. Like you I saw her get weaker by the day. She did have a period of remission and we thought all of our prayers had come true, but sadly she relapsed and so I cared for her 24/7 whilst holding down a full time job working from home. She was in and out of hospital having become very susceptible to infections and very nearly died of sepsis. 2 months before she died she couldn't do anything for herself, not even walk. It broke my heart seeing her deteriorate before my eyes. I won't lie to you, it was very tough caring and working and you may become frustrated and angry. I got frustrated by the fact that 8 could only visit my wife in hospital for 1 hour a day due to Covid restrictions and no one else was permitted to see her. All the hours lost where I wanted to be with her and support her.  Fingers crossed the immunotherapy works xx

Reply
  • Hi,

    I am so sorry to hear everything you and your husband are going through. Just never give up hope and always be that rock for them. My wife died of CNS Lymphoma just 6 months ago after a 10 month battle. Like you I saw her get weaker by the day. She did have a period of remission and we thought all of our prayers had come true, but sadly she relapsed and so I cared for her 24/7 whilst holding down a full time job working from home. She was in and out of hospital having become very susceptible to infections and very nearly died of sepsis. 2 months before she died she couldn't do anything for herself, not even walk. It broke my heart seeing her deteriorate before my eyes. I won't lie to you, it was very tough caring and working and you may become frustrated and angry. I got frustrated by the fact that 8 could only visit my wife in hospital for 1 hour a day due to Covid restrictions and no one else was permitted to see her. All the hours lost where I wanted to be with her and support her.  Fingers crossed the immunotherapy works xx

Children
  • Hi moodster, Thanks for sharing your experience with me. I'm so very sorry to hear your wife passed away. You sound like you have done an amazing job looking after your wife in a heartbreaking situation.  Covid has held back so many things and the restrictions are so cruel to those with cancer. Can I ask how did you address the caring issues with your work? I have been fortunate to have been able to work from home and my boss has been amazing, but now Covid restrictions are lifting I feel there is an expectation I need to go back to the office at least some of the time? I think this is were my latest bout of anxiety stems from. Did you have anyone to help you with some downtime?  I can't believe our situation has turned so quickly and my husband is struggling so much but I guess that's the nature of the illness.