Hi Aemi

Yes still hanging in there as I take it day by day & it means a lot knowing you are all there for me if I need to take, I have just reply to Jules as I don't know if I reply to each one or do one big reply to every one? As not that good with my spelling as even when it's right it don't to me lol you take care x

Hi Mower

Its great that you are able to help with arrangements and am sure your Dad is coping much better having  your support. Medical terms are a bind aren't they and I cannot help I am afraid. If the care coordinator is unavailable for some reason you can give the nurses a ring on this forum from Tuesday (as Monday bank holiday) 9-5 (free from landlines and some mobile networks) and am sure they will be able to explain a little more.(or there may be someone reading your post who will understand.

 The waiting around does not help as you just want to know what is happening and get your head round things (found it helped me to prepare myself as hunby never wanted to discuss it with me and I had to wait for the medical team to explain as we progressed through his illness (thankfully he gave permission for all his 'team' to talk with me )). Remember to look after yourself too.Jules x

Poor dad he has been through quite a journey already.  What can I say?  Just that we will keep you in mind today - it's awful seeing all this pain and suffering and feeling help less. I sincerely how things come together and dad improves.  

We will be thinking of you all today

Xx

Hi Brighteyes

Yes he has been through a lot some say it would of been better if he didn't pull through 18 months ago as he will be in a lot of pain one day & others say you have had  extra time with him as should of died back then but I disagree with both of them answers as I have enjoyed them 18 months & still enjoying the time we have, thank you for being here & how are you doing? Take care x

Hi Jules

I can't see the post I just sent you so don't know if it sent? So here I go again lol,yes it's the not knowing that's hard as all I have said could be wrong but I don't think I am, just waiting for the appointment for the consultant to find out what the results are from his cat scan & biopsy,plus see if it has spread else where as I think it could be in his neck as will but hopping I'm wrong, my Dad gave me permission years ago & from now on I have told them to call me & not my Dad from now on. How are you doing?Take care x & thank you for getting back to me x

Well yes I do understand -- any time with dad is- well - precious.  Thank goodness he has you.  I am sure he thinks every day is precious also.  We went for a walk today and I thought about you and all the others on the forum.  How special you really are: when you think of all the people pushing and shoving in the super market I work in - how little peace they have- well I know we shouldn't judge a book by its cover and we don't know their story. But we do sometimes,  although we shouldn't.  You are special!  As all the people on here are xxxx

That was lovely what you said thank you & yes everyone is so brave & special on here take care x

Hi Mower

Back home from work so just catching up on my mail again!  Your post only appears once so thanks for 'sending it again'. Hope the appointment comes through soon so that one way or another you both know what is going on (and hope it is better news than you are perhaps expecting too). Its good that you can deal with these things on your Dad;s behalf.  I have Power of Attorney for my Mum and to be honest it does make it a little easier although I always run things past her, she does not always remember me doing so!

I am 'managing' okay on a day to day basis (obvious hiccups along the way but only to be expected I think.). Watched a drama on tv last night and though it was about a different cancer to what my hubby had, I lost a friend to the sane kind of cancer around this time last year and it reminded me of her struggles and triumphs through her journey (I was so proud of her way of dealing with it and we spent some fun times (when she was well as well as when she was sick/on treatment) as she managed to fulfil so many of her bucket list wishes (she was first diagnosed in  her early thirties  and passed away just shortly before her 60th birthday!). She was totally inspirational and even supported me when we  learned of hubby's diagnosis.  There are some truly lovely people around.

Take care and chat again soon.  Jules x

Hi Jules

Sorry didn't get back sooner, my Dads appointment came today it's on the 14 May so not long to wait plus ask the care coordinator to come out & talk to my DAD before the appointment so it's not to much of a shock to him & me as this will be the first time it's been confirmed to us other then in the letter & ask what is a care coordinator & what do they do, hope your day was good as I just got back from my Dad's & off to bed in a bit as I'm up at 3am for work. You take care x