Hi Mower, so sorry this has happened to your dad.

You can contact the macmillan nurse assigned to your dad to ask questions. She may not have the answers immediately but will find out what she can, and may also help with other things you are in need of. 

I think your dad and you and your family can get counciling to help you during this difficult time if you ask too. Sometimes we need to lean on others a bit when times are hard.

Thinking of you and your dad and wishing him well

Aemi x

Thank you for your reply its so hard seeing him in pain & thinking how long I have with him, but got a load of questions to ask his consultant when we get an appointment but don't know when that will be as he has cat scan today & not heard any think about him going for his biopsy yet, it's just a waiting game & it feel like they are taking forever.

I don't believe it my Dad just had a letter for a care co-coordinator for cancer care (squamous cell carcinoma) thank god he didn't read it & gave it me, what a way for him to of found out, I told him it's in case he needs a doctor when they are closed as I didn't want to tell him he has cancer &  even I wasn't 100% sure he had it.

Hi Mower,
Is the letter offering help if required?  Are the results of biopsy though so quickly?
Cannot believe this is the way folk over there are notified via post.  It's still not your job to tell him.  The gp should be doing it.  Minding my language as would love to type something inappropriate. Grrr
Kathy xx
 

Hi Kathy 

yes it is offering help & care so don't have to go in to hospital when the time comes, one way of finding out he doing have long left as not seen consultant yet or had it confirm, I think he knows it is as seen flu jab on the letter & above that is says cancer care, but not saying anything as don't want to upset me so I'm going to see if he comes out with it in a bit,  take care x

  Ps I'm hopping I didn't accidentally press report post by mistake sorry if I have x

Hi Mower

sorry for not replying sooner but  do agree with what Kathy has said and am sure it will be easier for your Dad to understand matters when he has the appointment with consultant. Definitely annoying that the letter should arrive before he even knows what is happening.(though good to know you will have necessary support when time comes). So glad you were able to intercept post. Its quite possible that your Dad is aware of what he 'thinks' he has but would find it hard to talk to you about just now as needs time to process it himself. (My husband  chose to find out for himself (went to appointment on his own and then told me). Terribly emotional time for all concerned but the forum is here when you need to talk things through and I hope all will seem a little clearer once the appointment takes place.

Hope the drinks are  helping your Dad and he is feeling  more comfortable but do not hesitate to go back to the GP if either your Dad or you need support before the appointment.  Sending a hug.Jules

Hi jules

Thanks for getting back to me, he said to me today it could be cancer & I said yes it could be & left it at that as going to see if I can get hold of the care coordinator on Tuesday & see if some one can come out & explain it to him as it will be to much for him to take in when we go back & see the consultant, plus I would like to know what  [m] squamous cell carcinoma NOS mean, I know what scc is. This is all from his blood tests as they wouldn't of go his results because the care plan is dated 28.04.15. Take care x

Hi Mower

Its great that you are able to help with arrangements and am sure your Dad is coping much better having  your support. Medical terms are a bind aren't they and I cannot help I am afraid. If the care coordinator is unavailable for some reason you can give the nurses a ring on this forum from Tuesday (as Monday bank holiday) 9-5 (free from landlines and some mobile networks) and am sure they will be able to explain a little more.(or there may be someone reading your post who will understand.

 The waiting around does not help as you just want to know what is happening and get your head round things (found it helped me to prepare myself as hunby never wanted to discuss it with me and I had to wait for the medical team to explain as we progressed through his illness (thankfully he gave permission for all his 'team' to talk with me )). Remember to look after yourself too.Jules x

Poor dad he has been through quite a journey already.  What can I say?  Just that we will keep you in mind today - it's awful seeing all this pain and suffering and feeling help less. I sincerely how things come together and dad improves.  

We will be thinking of you all today

Xx

Hi Brighteyes

Yes he has been through a lot some say it would of been better if he didn't pull through 18 months ago as he will be in a lot of pain one day & others say you have had  extra time with him as should of died back then but I disagree with both of them answers as I have enjoyed them 18 months & still enjoying the time we have, thank you for being here & how are you doing? Take care x

Hi Jules

I can't see the post I just sent you so don't know if it sent? So here I go again lol,yes it's the not knowing that's hard as all I have said could be wrong but I don't think I am, just waiting for the appointment for the consultant to find out what the results are from his cat scan & biopsy,plus see if it has spread else where as I think it could be in his neck as will but hopping I'm wrong, my Dad gave me permission years ago & from now on I have told them to call me & not my Dad from now on. How are you doing?Take care x & thank you for getting back to me x

Well yes I do understand -- any time with dad is- well - precious.  Thank goodness he has you.  I am sure he thinks every day is precious also.  We went for a walk today and I thought about you and all the others on the forum.  How special you really are: when you think of all the people pushing and shoving in the super market I work in - how little peace they have- well I know we shouldn't judge a book by its cover and we don't know their story. But we do sometimes,  although we shouldn't.  You are special!  As all the people on here are xxxx

Well yes I do understand -- any time with dad is- well - precious.  Thank goodness he has you.  I am sure he thinks every day is precious also.  We went for a walk today and I thought about you and all the others on the forum.  How special you really are: when you think of all the people pushing and shoving in the super market I work in - how little peace they have- well I know we shouldn't judge a book by its cover and we don't know their story. But we do sometimes,  although we shouldn't.  You are special!  As all the people on here are xxxx

That was lovely what you said thank you & yes everyone is so brave & special on here take care x