Mum just diagnosed with pancreatic cancer

Hello,

Before I start, I wanted to thank everyone for their posts on here - it is incredibly moving but also inspirational to read your stories, and has prompted me to join.

My darling Mum has just (last week) been diagnosed with pancreatic cancer - she has been told that there is a tumour of approx 25mm in the tail of her pancreas and 1, possibly 2 seedlings in the blood vessels joining the pancreas.  I've tried working out what this means in terms of stages and outlook, but am just confusing and upsetting myself by trying to work it out so am going to stop and let the experts  guide us on what it means and what is happening.

I've been a mess ever since she and my Dad told me - every emotion from anger to confusion to utter sadness has hit me and I keep bursting into tears. She is only 64 and has been the most fantastic mum and grandma, and I cannot even begin to imagine what life would be like if the worst happens.  I am lucky that I have a wonderful husband, brother and dad for support - but I know I need to support them too, and ultimately what matters is that we all stay strong and positive for my Mum. 

I am having trouble getting from how I feel now, to how I know I must feel to support Mum.  I am fighting to stop myself falling to pieces, especially as I have a 17 month old daughter who needs me too - one of the hardest things to deal with is that she may not ever properly know my mum, I just cannot cope with the idea that she may not know someone who is so very important to me?

I can only hope that this is an initial period of shock and that my emotions will 'settle' so I can be and do what I need to for Mum.  Mum has been told that Chemo is the first course of action and I have convinced myself that this means surgery is not an option, and all they can do is try to control it, but not cure it.  Again, I know I should not think like this, but can't shake off my fears at the moment.

I know you all have your own stories and ordeals to cope with, but if anyone has some time to share any help or advice on coping in these early stages, I would really appreciate it.  Also, if you have any positive stories about pancreatic cancer, again I would love to hear them.

Thank you everyone xx

Parents
  • Thank you everyone for taking the time to reply.

    Hopewells - I am  sorry to hear about both your Mum and your little brother, although good news that he is on the mend, and am sorry you are going through all this at such a young age.  I wish you well with all that lies ahead.  I take on board what you say about feeling lucky for the time I have had with my Mum, but that doesn't necessarily make what she is going through any easier to deal with - with things like this, it's probably best not to try and compare who is luckier than who, as when you are going through it, I'm sure it's just as hard for all of us for many different reasons and in many different ways.  Thank you for your advice and your prayers and for sharing your story.

    Mickied - thanks also for your reply, you are absolutely right that the only way to deal with this is to live one day at a time, and I absolutely have to focus on doing that.  But you are right that it comes down to the kind of person you are, and just because something like this happens, you can't suddently change the way you feel or react to things.  I wish you all the strength to get through this to, and please stay in touch as  I feel there are some similarities in the way we are feeling and coping.

    Brian - a massive thanks to you again, you write so well and manage to say so many of the right things.  Thank you for your wishes.  I am feeling better this week, and planning a few more trips to spend time with Mum  I just want to until we are given some more indication fo what the future holds, and without sounding morbid, would never want to regret not spending time with her - she keeps feeling guilty about us travelling to see her, so I am having a job convincing her that we do it because we want to!  All the very best to you and please stay in touch.

    Catherine x

  • Hi Catherine

    As they say life can be so cruel sometimes and it can be very hard to try and get through each day as it comes.  How is your mum keeping and how are you?

    I kept your mum in my prayers and discovered last week that a young baby who undergone a heart operation survived and is on the mend so sometimes there is someone listening.

    Thank you for the invitation to stay in touch which I promise I will do.

    Take care

    Mickied

  • Hi Catherine,

    I am so sorry to hear about your mothers deteriation. I can so relate to what you said about it's happening but it feels like it isn't. It almost like it is happening to someone else. When my mother reach the stage your mother is at, I felt so useless as I was powerless to stop what was unfolding before me. Even though I had lots of support from my family, I did feel so alone. I was a weird feeling and one I cant fully explain. You say you don't know if you can be brave and strong, but you will of that I am sure. You say you are trying to avoid crying Catherine and I do understand why you say that. But please don't bottle it up too much for crying is natures safety valve that lets us shed some of those pent of feelings that tend to pile up much like a log jam. It better to release them a little at a time.

    Please take care , will be thinking of you and anytime you want to chat you know where to come.

    Sending best wishes to you and your family, Brian

  • Hiya Catherine,

    Bless you for having the strength to post here after what must have been a nightmare of a few weeks.  Am so sorry to read that your poor Mum (who so much wanted to fight to live) has been unfotunate enough to suffer from the consequences of treatment. My hubby was the same but has always said that you have to try as if it works it can make a difference.  She still sounds an amazing lady and keep having those chats when you can manage visiting , they mean so much. As you say hindsight is a wonderful thing a regards the holiday of a lifetime she may have taken with your Dad but in her heart she wanted to try and extend her life and she felt it was the right choice.  Maybe too she was worried about being away from home in case she became ill (my hubby does not feel 'safe' at the thought of travelling for holidays now so we have resigned ourselves to a back garden summer should he stay stable). I think you will find the move to the hospice a much more peaceful place than a general hospital (My Dad always said they were so friendly and understanding when he went in both for respite for my Mum and towards the end some three months later).  They are a special breed of staff  there and seem to encompass the whole family.  Also feel free to come and ramble whenever you need to offload - we all do it and I am sure it helps to write down how you feel. Believe you me I  have often typed in tears as I am sure many others do to - its a release valve that can come on at the most unexpected times and there is no right or wrong time to cry.

    I am pleased that you managed that holiday with your husband and daughter. I am sure it  was a strange experience in many ways as your head would be in one place and your  heart in another but your daughter and other half need you to as much as you need them.  Wishing you all a peaceful weekend and know that the forum is always here to listen.  Sending virtual hugs.  Jules

  • Hello Jules,

    Thanks so much as always for finding the time to reply, and for finding the right things to say to ease some of the painful thoughts I've been having throughout this.  You are right about my parents cancelled holiday, and my husband has said much the same thing - would we ever have rested knowing she had opted to do that instead of start the treatment, and would she have enjoyed it anyway.  It is painful now but at the time, was the right thing to do.

    We have all said that we feel somewhat calmer that she is now in a hospice, it is partly for respite care as well as the fact that time is so uncertain - she was on a manic hospital ward for 3 weeks, and the lack of proper rest has wiped her out so we are hoping that a calmer environment will give her more strength and peace of mind, but it really is a one day at a time thing.  I will take comfort from your Dad's words, and know from experience with my Grandad that they are a very special place, and in many ways provide care for the family as well.

    I wanted to say a particular thank you to you for your words about mum sounding like an amazing lady - sometimes when I have written on here, I am conscious that it is about me and how I feel, and I very much want to convey in all this that my mum is a wonderful person and your words bring me some comfort that maybe I have communicated that more than I think.

    Your are also completely right that the holiday was a good thing to do - it made me realise that emotionally, I probably have been a bit distant from my husband and daughter, and it also reminded me how lucky I am to have them and that time with them is precious.

    I understand your husband's wish to stay close to home, and I am sure we are due a beautiful summer (after the awful winter we have had) so will keep everything crossed for you that the weather is kind and that he remains well, and you can have some lovely warm and lazy days in your garden.

    My dad has just called whilst I was writing this message (we decided to head up tomorrow to give my mum time to get settled and get some much needed rest), and has said they both feel so calm now mum is in the hospice (St Barnabas in Lincoln) - dad is already over-whelmed with the kindness and care of the staff, and this really helps.

    A big thank you again, and take care,

    Catherine x

  • Hello Brian - like Jules, you always find the right words to help me look at things in a better light, so thank you.  I know you have both lost parents, so can really relate to what I am feeling and going through so I know your words are heartfelt.

    You mention about a weird feeling, which is exactly what I feel now - like you say, powerless in one way, but I have just been saying to my husband that I feel strangely calm.  I think it is partly the self-preservation thing I mentioned earlier, like not letting myself get onto the downward spiral of falling apart.  But it is also that in some ways it feels like all the turmoil of the fight is coming to an end, and the important thing now is for mum to be calm and comfortable, and knowing that she is helps me too.  Difficult to explain, but some of the way I am feeling now is unexpected.

    Thank you for your words about crying, I promise not to bottle it up, but to be honest just talking abd writing on here lets me get a lot of the emotion out.  I do find that I get very choked when I speak about it, but am fortunate to be surrounded by people who care so much that they don't mind me sharing how I feel.  LIkewise, all you lovely people on here are very ease to share with.

    Thank you again Brian, for your words today and previously.  And I must ask, how is your father doing now?  And you, as I know this cancer battle has affected you personally as well?

    All the very best,

    Catherine x

  • Hi Catherine,

    Thanks once again for your kind words. The hospital finally found out my father had a twisted bowel which got worse at times. They finally operated on him and he is now home recuperating. It has taken a lot out of him as he is still very weak. I am both amazed and proud of him as next month he will be 91. To have been in and out of hospital 11 times since October and still not have given in shows the fighting spirit he has.

    As for me I have had the results of my latest blood test a couple of weeks ago and my PSA is still the lowest that can be measured at 0.01. That make it sixteen months in a row now. My diabetes and cholesterol are also very good so I feel I am so very lucky to have such good results.

    Thank you for asking Catherine when I know you have enough problems of you own. I am so glad I found this site, nearly a year ago now as I have met so many wonderful, kind, caring and compassionate people like Jules and yourself and so many others. Talking to you all is a real privilege.

    Have a great wekend, and thanks once again for your kind words. Best wishes to you and your family, Brian.

  • Mickied,

    So sorry for not replying to you sooner, but I read your message last week and as always your kind words really did the trick and lifted my spirits.

    Suffice to say, life has been somewhat crazy this last week - have been travelling up and down the M1/A46 to Lincoln and back, but it has been worth every minute to spend time with Mum, even when she has been too weak to talk, I've just been able to sit and hold her hand.

    The hospice she is in in a wonderful place - I had my husband and daughter with me last weekend, and we were a little worried about a toddler being there but the staff embarced us all and made us so welcome.

    All in all, I think she is  in a better place than a week ago - the future is completely uncertain, the docs won't commit, but she is rested and comfortable and at ease with where she is and what is happening.  We couldn't really ask for more under the circumstances.

    Thanks again for your support and I hope all is well with you, take care and have a good weekend,

    Catherine x

  • Brian,

    Apologies for the delayed reply, but I read the wonderful news of your Dad's and your own progress with much happiness.  Long may it last for both of you.

    I couldn't agree more with your words about how good it was to find this site, and what a difference it has made to share stories with so many people.  It always makes me feel better to think that people will take the time to help, and for that I am grateful.

    We are in a better place than a week ago - the future is completely uncertain for my mum, in terms of time, but she is at ease and comfortable and rested and in a wonderful hospice where she is getting amazing care.  I've been with her as much as possible, and will be going again this weekend.

    For now, things are as good as they can be under the circumstances and for that we have to take comfort.

    Thanks again for all your words of support,

    Catherine x

  • Hi Catherine

    Just read your recent posts to Mickied and Brian (always so supportive to everyone on the forum) and am so pleased to read that your Mum is a lot more comfortable and peaceful in the hospice surroundings.  Somehow it makes visiting that much easier when you feel the warmth from the staff which includes the whole family not matter what your age.  I am also sure that your Mum will feel a lot less like a 'number' and more a real person with real needs (which are addressed) as the staff are very caring and considerate.  Wishing you all a peaceful weekend and a good visit to see your Mum and Dad. virtual hugs and best wishes. Jules

  • Hi Catherine,

    There is absolutely no need to apologize for you have so many thing to worry about. I feel glad your mother is in a good hospice. I found out when my mother was in one, they are better at administering pain relife far better than a hospital. And the staff seem to have more time to spend with the patient.

    So I am very pleased to hear your mother is at ease. This must be a big relief for you but you must feel tired from all the travelling you are doing. I hope this period of peace for your dear mother continues and that she increases in strength as a result. It is so hard when our loved ones future is uncertain for we cant make plans.

    I felt my mother would be here forever and I do still miss her. She would be so proud of her great grandchildren and is missing seeing them grow up. But I have met up with my sister twice in the last week or ,and who only lives about 1 1/2 hours drive from where I live and who I knew nothing about until about twenty years ago. My mother had to have her adopted when she was a young baby and I only found out about her after finding my father in Canada. I spent last Sunday walking round a National Trust garden with her and several times things she said reminded me so much of my mother. She has the same zany sense of humour as my mother so although she never met my mother until I managed to locate her about twenty years ago, I feel a part of my mother lives on in my sister.

    Anyway I have rambled enough for one day. Please take care and I send best wishes to you, you mother and family, Brian.

  • Hi Catherine

    There is no need to apologise.  I am so glad that my input helped a bit and thank you for this.

    I am so glad to hear your mum is more comfortable and is aware of what is happening in the hospice.  The staff there must do a wonderful job and as Jules says the people there are treated like a person and not another number by other members of the medical profession.  Just take each day as it comes Catherine and enjoy your time with your mum even if it is just to sit and hold her hand and let her know you are there.  I am sure your mum was delighted to see your little one last weekend.

    I wish there was more I could say Catherine to make things easier but there isn't.

    Just found out the other day a brother of my father's is in hospital with bronchial pnuemonia in both lungs and it doesn't look too good.

    Take care and keeping your mum in my prayers

    Mickied

Reply
  • Hi Catherine

    There is no need to apologise.  I am so glad that my input helped a bit and thank you for this.

    I am so glad to hear your mum is more comfortable and is aware of what is happening in the hospice.  The staff there must do a wonderful job and as Jules says the people there are treated like a person and not another number by other members of the medical profession.  Just take each day as it comes Catherine and enjoy your time with your mum even if it is just to sit and hold her hand and let her know you are there.  I am sure your mum was delighted to see your little one last weekend.

    I wish there was more I could say Catherine to make things easier but there isn't.

    Just found out the other day a brother of my father's is in hospital with bronchial pnuemonia in both lungs and it doesn't look too good.

    Take care and keeping your mum in my prayers

    Mickied

Children
  • Hi again,

    Thanks again for the words of comfort, always so appreciated.

    Just wanted to say so sorry to hear the news of your dad's brother, and hope he will be well looked after where he is, and is now as well and comfortable as can be.

    Thinking of you,

    Catherine x

  • Hi Mickied - sorry, that last message I posted was in reply to yours, but I didnt put your name on it!  Take care xx

  • Hello everyone,

    I'm afraid to say that this is the message I never wanted to write, but sadly knew would come at some point soon.  My darling Mum passed away in the early hours of this morning.  We all managed to be with her (just, as after several days and nights of sitting at her bedside, had decided to take short sleep shifts so it was a bit of a panic to get everyone up in time) but fortunately the wonderful nurses at the hospice helped us achieve this.  Despite the horrendous situation, the nurses were able to keep her comfortable and pain free, and Mum's last minutes were peaceful and with those who loved her so much.

    It has been the strangest day - I think we are all exhausted and numb, but have gone from moments of joy and laughter as we think about Mum, to moments of immense sorrow and disbelief.  I guess this is normal.

    I'm in such a state this evening that I am struggling to find the words that I want to say.  But, and forgive me if this seems a little indulgent, I did just want to come on here and pay tribute to my mum, by saying what a wonderful person she is, and that we could not have wished for a better Mum, wife and grandmother (and, also, judging by the state of my husband today, am guessing she was considered a wonderful mother-in-law too!)  None of us quite know what our lives will be like without her, but we know they will always be richer for her having been in them.

    My thoughts continue to be with those going through the ordeal of cancer at the moment, and also to all of you who have been so kind to support me as I have tried to come to terms with Mum's illness.  Your kindness has been so very appreciated.

    Thank you everyone, Catherine xx

  • Catherine, my thoughts are with you and the rest of your family during this saddest of times. It was  a lovely tribute to your Mum that you found the strength to post so soon after your loss. She will live in your heart forever and has helped make you who you are. Am pleased for you all that you were able to be with her during her last few days and that she passed with the comfort of her family around her in such peaceful and pain free surroundings. Sending virtual hugs.Jules x

  • Dear Catherine

    I am sending condolences to you from all of us at Cancer Chat. You have been with your mum every step of the way and, as Jules has said, it is good to know that she had a peaceful final few days surrounded by her loved ones.

    Best wishes to you and your family at this sad time,

    Jane

  • Oh Catherine,

    I am so sorry to read this. But I think it just goes to show from the tribute you wrote about your mother, what a wonderful daughter you are and it must have made your mother very proud to have a daughter who loved her as much as you have. Like Jules, I am glad you and the family were able to be with her right to the end. I know the hugely differing range of feelings you talk about as I felt pretty much the same when I lost my mother. I thank you for coming on here to let us know and please come back anytime you want Catherine, for you have made many friends on here over the past few months who will do all we can to help and support you through this most painful time.

    Sending my deepest sympathy and condolences both to you and your family, please take care of yourself, Brian

  • Catherine,

    Just to say I am so sorry to hear that you lost your Mother yesterday. You describe her as a wonderful Wife, Mum, Grandma and Mother in Law.  I just want to say I think she must have passed on some of her traits to you as you have written such lovely messages to people (including myself) on here, and it sounds like you are a wonderful daughter to your late Mum.  Thinking about you and your family at this terrible time.  I hope and pray that the day will come very soon that people dont have to lose their lives to this awful illness.   Kathryn x  

  • Jules, Brian, Kathryn and all others who have replied to me previously,

    Thank you so much for your words of kindness and comfort,.  The last few days have been impossibly hard, but I have found that the kindness and thoughts of others, and in particular those who have gone through this, have helped so much.

    I will certainly stay in touch on this forum, as will never forget the support of you all, and as alwasy wish you all the very best.

    Take care,

    Catherine xx

  • Catherine,  everyone who has shared your story will be keeping you in their thoughts during the terribly hard time for you and your family. The forum's support is there for whenever you need to chat. Take care and sending hugs.Jules

  • Hello Catherine

    So sorry to hear your mother has passed away, trying to find the right words but I'm relieved that you were with your mother during her last moments. For me this was very important and what seemed like the only part of the whole terrible experience I had some control over. Your waves of emotions and feelings right now are all too familiar as you know. Trying to come to terms with reality of losing someone so precious and how your world will be from this moment on is such a heart wrenching reality it leaves us feeling numb, I'm still in a state of separation from my emotions; having to make all the necessary arrangements has detached me a little.

    Your mother was obviously a dearly loved lady and if like my mother she was the central hub of the whole family it will feel like something is truly broken. Your love, support and care through this ordeal is something your mum is proud of, I believe it is how people live on after death. Please try to find comfort in how she lives on in you all through your ways; I know this helps me in my dark moments. When you have a moment look up a poem by Henry Scott Holland 'death is nothing at all' you may of heard it before, I read it at my best friends eulogy and it comforts me still.

    Can I thank you for your support during my mothers death, your kind words certainly helped me get through. My thoughts are with you all, be brave and be there for one another just as your mum would want you to be.

    Nick x