Hi Lindabobs, and a warm welcome to the forum, so sorry to hear your husband has metastatic prostate cancer, and how frightened you are feeling, what you are feeling is perfectly normal, It's an awful thing to be told you or a loved one has cancer, so please don't feel bad about the way you feel. It's the hardest time going through tests, waiting for results and for treatment to start, but once it does and you start fighting back against this awful disease things do get better I too have metastatic prostate cancer MPCa, diagnosed July 22, though our diagnosis is similar, I have a very rare and aggressive variant, I was given a prognosis, which is just a guess and ignore, though mine was never curable, many guys with MPCa are, and i know many guys still here 10 years on, I was in healthcare 15 years, 5 in cancer care and todays treatments are so much better than just 5 years ago and getting better all the time, my very best wishes to you and your husband at your oncologist meeting.

Eddie xx

Hi Eddie - thank you SO much for taking the time to reply. Just knowing there’s someone out there to speak to is massively helpful in itself. My husband has also been told he has an aggressive cancer. MRI no 5 & Gleason score of 10  - in lymph nodes & bones - so everything seems to be the worse it can be right now. He had a hormone injection yesterday & felt quite unwell. Hey ho - mustn’t make assumptions before oncologist. 
t Thsnks again - Linda 

Hi Linda, it's good to hear from you, and glad you got to see your your oncologist, your diagnosis is very similar to mine, as is your treatment, Linda, i'm sure your aware of possible side effects from hormone therapy, and there are a few, not everyone gets them, most of us just get some of them and they are usually treatable and eventually pass, but 1 fatigue, almost everyone gets, and it's the only one you can prepare for. It will really help your husband in the months to follow if he could get himself as fit as he can, it will lessen the fatigue and help him feel better physically and emotionally. treatment does feel daunting, but you get used to it, and fingers crossed, your lucky with side effects and HT give your cancer a massive blow. Radiotherapy is usually a few months after HT starts to give it time to shrink the cancer, I will have everything crossed for you both.

Thank you Linda, I am ok, I see my oncologist next Tuesday, as my PSA is rising, my treatment will change. I don't know if I told you but my eldest daughter is also fighting cancer, her 2nd time in 12 years, she's been through radiotherapy and surgery with chemo to follow, when her recurrence was1st diagnosed, the consultant gave her a year, so we swapped oncologists, and with just chemo to  come, her fab team are confident her chemo will cure her, you can imagine how happy I am, my very best wishes for your treatment.

love Eddie xx

Hi Eddie - just wondered how things are going with you & your daughter. Hope you are both getting through ok. 
My husband is getting lots of hot flushes with the hormone treatment but is managing to make light of it so far. Lots of appointments ahead - treatment & monitoring. 
Thinking of you.

Love Linda x

Hi Linda, It's good to hear from you, my daughter, Mandy has recovered from surgery, which went as well as possible, she will be having a scan next week and starting chemo Jan 2nd, all her tam are confident of it being done to cure.

I've been getting faulty scan results, and have seen my oncologists 4 times in 6 weeks, but my last 2 a fortnight ago CT/contrast and NM bone, show my cancer, 5 organs and 8 lymph nodes, is undetectable except for 1 lymph, which we are hoping to hit with SABR, there are 2 markers on my ribs, probably cancer but will know on Tuesday for sure, if it is, they will get hit by SABR as well.

Linda you said hubby is getting lots of hot flushes, but is managing them, if they become a problem, Menoforce sage tablets from Hollande & Barrett can help, and try to see appointments as opportunities to expand your understanding and discuss your concerns, I like Maggie's too and also go to the one in Leeds.

best wishes to all your family.

love Eddie xx

Hi Eddie - really sounds like positive news for your daughter & yourself with treatment going forward. Feels like they’re really on top of situations which is very reassuring. 
Thanks for the tip with Menoforce - anything that might help is very welcome. He also has a cold pack for his forehead sometimes which is really quick to lower his temperature. Every little helps as they say. 
Thanks for keeping in touch & take good care. 
Love Linda x

Morning Linda, you are welcome, and it's always good to hear from you, and thank you, I have had some good news lately which is welcome especially regarding Mandy, I have MDT meeting No5 on Tuesday "my 5th in 8 weeks", hopefully my last for some time, and we can finally make some holiday plans, as you probably know, we do like holidays, say hi to hubby for me and take good care of yourself too.

love Eddie xx

Hi Eddie - just to wish you a Happy New Year. Hope you are doing ok & have been able to plan some much loved holidays! Hope also your daughter is getting on well. 
We had a short blip when my husband’s bp went up too high so he had to have tablets to get that down. Thankfully they’re working so the next step is hearing the date for radiotherapy. Generally he’s coping well & getting on with life.

Deep snow here today so could be digging the sleds out if grandchildren arrive. Take care.

Love Linda x

Hi Linda, and happy new year to you both,I'm sorry to hear hubby's BP was up, but good to hear it's been sorted, and best wishes for the radiotherapy, have you been given a rough idea when it will happen?, and it's great to hear he's getting on with life, as I hope are you.

Mandy, started chemotherapy last Thursday, and is doing really well, my youngest "son" and DIL,  gave me 2 beautiful new granddaughters this morning, just after 3am, Lesley and Pauline, named after their Nana's, and mum are doing well and granddad couldn't be happier.

I am on holiday now, visiting friends in Dufftown in the Cairngorms, but home today before the snow arrives or we will get snowed in, sounds like fun getting the sledges out, take care.

love Eddie xx 

Aw Eddie - MANY Congratulations on the arrival of your grandchildren!! What lovely news for the New Year! Bet you can’t wait to meet them.! Sounds like your daughter is well underway - great to hear too!! 
Nige hopes radiotherapy will start before the end of January - he’s got appointment on 15/1 to discuss. 
Must be beautiful up in Scotland - a place very dear to our hearts. Safe journey home. 
Love Linda xx

Thank you Linda, I'm hoping to see them this week, but as I live in Yorkshire and my son on the Welsh borders, getting there might be difficult.

That's good to hear Nige's RT is soon, will his appointment be to get his tattoos too.

I love Scotland too, I was born in Oban, and have family their as well  

Hi again Eddie - we love Oban - so pretty. 
We’ve had to wait for Nige to be on hormone therapy for minimum 3 months so not sure how quickly they’ll start RT. The appointment on 15/1 is a telephone one but Nige is going to ring tomorrow to see if he can get face to face instead. We’ve certainly learned that patience is a virtue during this journey & very little can be rushed. So don’t think he’ll be getting any tattoos soon. 
We used to live in North Yorkshire nr Richmond & now live in County Durham (originally from Essex & moved up with Nige’s job). Adore the north east & been here almost 30 years.

Love Linda xx

Hi again Eddie - we love Oban - so pretty. 
We’ve had to wait for Nige to be on hormone therapy for minimum 3 months so not sure how quickly they’ll start RT. The appointment on 15/1 is a telephone one but Nige is going to ring tomorrow to see if he can get face to face instead. We’ve certainly learned that patience is a virtue during this journey & very little can be rushed. So don’t think he’ll be getting any tattoos soon. 
We used to live in North Yorkshire nr Richmond & now live in County Durham (originally from Essex & moved up with Nige’s job). Adore the north east & been here almost 30 years.

Love Linda xx

Hi Linda, sorry about the delay, just got back from Scotland,  9 hours of sliding on ice, aquaplaning, thick fog and diversions, lovely, lol, 

A three month wait would be very quick for RT to start, they usually like to give HT a good time to  work on the cancer and shrink it before Rt starts, to give it the best chance possible, and good luck getting a face to face 

So your an Essex girl, I've never been, but I have been to Durham, I studied English history  at University there,, and my 1st partner and mother to 3 of our kids came from there also, love Northumberland, 30 years there and at Richmond Wow, good luck for the 15th 

love Eddie xx 

Hi Eddie - hope you’re doing & responding well to treatment. Nige’s radiotherapy starts on 17/2 so it’s good to have a start date. Four weeks scheduled. His ct scan next week. Few issues with blood pressure but seems to be settling down at last. Saw the Oncologist today. 
Hope you’ve managed to meet your granddaughters but if not that it happens soon. 
All feels a bit real now.

Love Linda xx

Hi Linda, treatment change OK, nearly 6 weeks now, fatigue and hot sweats, so going through the male menopause again,lol, and bone scan results encouraging, negative regarding ribs, and lower spine, they said, scan shows suspicious markers suggestive of cancer, I have damage from a broken back, lesions, arthritis and osteoporosis with multiple fractures to my lower spine, and I'm leaning towards a misinterpretation of the scans AGAIN.

Only 4 weeks to go, so how are you managing the waiting, I know it can be tough, but it will be here before you know it, and he will get his tattoos at his scan next week, they're painless, and its likely Nige's RT will be very similar to mine, likely a slightly higher dose to a larger part of the lower pelvic area,  again this is painless, and the radiographers are so nice and patient and will help you through treatment, and if you have any questions or concerns, they will answer them as well, and if I can help you only have to ask.

We, their  Nana and I have been to see our granddaughters twice, their gorgeous, and everyone doing well,  I wish I could send a photo, 

As Always my best wishes to you both.

love Eddie xx  

.

Hi Eddie - always good to hear from you & glad you’re getting through treatment. Your words always feel reassuring & make things seem doable & ok. Thank you again for your support. 
I think we’re both glad we have dates now - 4 weeks of rt. Hoping after that we’ll be able to plan a holiday . 
Delighted you’ve met your granddaughters - I don’t doubt they’re both beautiful!! It’s such a privilege to be grandparents isn’t it. I never had any sadly as both my parents were older when they had me but I love every minute of being a nanny to mine (3 boys & a girl) 

Anyway - take good care - keep well & many thanks.!

Love Linda xx

Hi Eddie - firstly how are you doing? So much can happen in a short space of time sometimes - that much we have learned. Hope you are doing ok & coping with whatever has been sent your way. 
Nige has just finished first of 4 weeks rt - getting to understand routine & learning as we go. Stresses like parking at the hospital been tough. Bladder/bowel preparation been interesting but ok. Sure you’re completely familiar with all of this. Been warned going forward not to book anything until treatment finished as side effects will be unpleasant. 
We’ve been trying to find out what happens after this 4 weeks & so far it seems just psa tests which seems a bit vague. Hopefully there’ll be a ct scan too. 
We took a leaf out of your book & went to The Lakes for a few days last week which was lovely.

Look forward to hearing from you.

Love Linda xx

Hello, Linda, my dad is in hospital and asked me to let you know when he is able too, he will reply. M, 

Hi - thank you so much for taking the trouble to reply. Please give your Dad my very best wishes when you see him.

Love Linda x

That's so kind of you, many thanks, dad was transferred to his specialist hospital yesterday after 3 days, and is finally getting the treatment he needs and is responding well. I will pass on your good wishes, and our best wishes to you and your family, I'm Mandy, dads eldest. 

Thanks Mandy - so glad your Dad is getting the right treat now. He’s been a huge help in the time we’ve been chatting on this site - so positive & inspiring to me. As you well know it all feels like quite a ‘minefield’ & a waiting game so any help or words of advice are very welcome.

Love Linda x

Hello Linda, many thanks, I've been through cancer twice, and only a couple of weeks ago was told I'm cancer free having twice been told I was incurable, so please never give up and being positive is proven to boost the immune system and give better outcomes, and it's better than being miserable.

I know dad won't mind, but mum was diagnosed with ovarian cancer 2 days after my all clear and was also told she was incurable, but dad researched all the oncologists and found a team he liked for mum, and had an appointment in 2 days and surgery 4 days later, which went very well and mum will have chemotherapy in 3 to 5 weeks.

Linda, my mum Lesley's side of the family are cursed with ovarian cancer, everyone has had it and none were cured, but for the first time ever mum has a chance of being the first to be cured, so if your not happy with your team, you are allowed to change them. Mandy x