Hi Lindabobs, and a warm welcome to the forum, so sorry to hear your husband has metastatic prostate cancer, and how frightened you are feeling, what you are feeling is perfectly normal, It's an awful thing to be told you or a loved one has cancer, so please don't feel bad about the way you feel. It's the hardest time going through tests, waiting for results and for treatment to start, but once it does and you start fighting back against this awful disease things do get better I too have metastatic prostate cancer MPCa, diagnosed July 22, though our diagnosis is similar, I have a very rare and aggressive variant, I was given a prognosis, which is just a guess and ignore, though mine was never curable, many guys with MPCa are, and i know many guys still here 10 years on, I was in healthcare 15 years, 5 in cancer care and todays treatments are so much better than just 5 years ago and getting better all the time, my very best wishes to you and your husband at your oncologist meeting.

Eddie xx

Hi Eddie - thank you SO much for taking the time to reply. Just knowing there’s someone out there to speak to is massively helpful in itself. My husband has also been told he has an aggressive cancer. MRI no 5 & Gleason score of 10  - in lymph nodes & bones - so everything seems to be the worse it can be right now. He had a hormone injection yesterday & felt quite unwell. Hey ho - mustn’t make assumptions before oncologist. 
t Thsnks again - Linda 

Morning Linda, you are welcome, and it's always good to hear from you, and thank you, I have had some good news lately which is welcome especially regarding Mandy, I have MDT meeting No5 on Tuesday "my 5th in 8 weeks", hopefully my last for some time, and we can finally make some holiday plans, as you probably know, we do like holidays, say hi to hubby for me and take good care of yourself too.

love Eddie xx

Hi Eddie - just to wish you a Happy New Year. Hope you are doing ok & have been able to plan some much loved holidays! Hope also your daughter is getting on well. 
We had a short blip when my husband’s bp went up too high so he had to have tablets to get that down. Thankfully they’re working so the next step is hearing the date for radiotherapy. Generally he’s coping well & getting on with life.

Deep snow here today so could be digging the sleds out if grandchildren arrive. Take care.

Love Linda x

Hi Linda, and happy new year to you both,I'm sorry to hear hubby's BP was up, but good to hear it's been sorted, and best wishes for the radiotherapy, have you been given a rough idea when it will happen?, and it's great to hear he's getting on with life, as I hope are you.

Mandy, started chemotherapy last Thursday, and is doing really well, my youngest "son" and DIL,  gave me 2 beautiful new granddaughters this morning, just after 3am, Lesley and Pauline, named after their Nana's, and mum are doing well and granddad couldn't be happier.

I am on holiday now, visiting friends in Dufftown in the Cairngorms, but home today before the snow arrives or we will get snowed in, sounds like fun getting the sledges out, take care.

love Eddie xx 

Aw Eddie - MANY Congratulations on the arrival of your grandchildren!! What lovely news for the New Year! Bet you can’t wait to meet them.! Sounds like your daughter is well underway - great to hear too!! 
Nige hopes radiotherapy will start before the end of January - he’s got appointment on 15/1 to discuss. 
Must be beautiful up in Scotland - a place very dear to our hearts. Safe journey home. 
Love Linda xx

Thank you Linda, I'm hoping to see them this week, but as I live in Yorkshire and my son on the Welsh borders, getting there might be difficult.

That's good to hear Nige's RT is soon, will his appointment be to get his tattoos too.

I love Scotland too, I was born in Oban, and have family their as well  

Hi again Eddie - we love Oban - so pretty. 
We’ve had to wait for Nige to be on hormone therapy for minimum 3 months so not sure how quickly they’ll start RT. The appointment on 15/1 is a telephone one but Nige is going to ring tomorrow to see if he can get face to face instead. We’ve certainly learned that patience is a virtue during this journey & very little can be rushed. So don’t think he’ll be getting any tattoos soon. 
We used to live in North Yorkshire nr Richmond & now live in County Durham (originally from Essex & moved up with Nige’s job). Adore the north east & been here almost 30 years.

Love Linda xx

Hi Linda, sorry about the delay, just got back from Scotland,  9 hours of sliding on ice, aquaplaning, thick fog and diversions, lovely, lol, 

A three month wait would be very quick for RT to start, they usually like to give HT a good time to  work on the cancer and shrink it before Rt starts, to give it the best chance possible, and good luck getting a face to face 

So your an Essex girl, I've never been, but I have been to Durham, I studied English history  at University there,, and my 1st partner and mother to 3 of our kids came from there also, love Northumberland, 30 years there and at Richmond Wow, good luck for the 15th 

love Eddie xx 

Hi Eddie - hope you’re doing & responding well to treatment. Nige’s radiotherapy starts on 17/2 so it’s good to have a start date. Four weeks scheduled. His ct scan next week. Few issues with blood pressure but seems to be settling down at last. Saw the Oncologist today. 
Hope you’ve managed to meet your granddaughters but if not that it happens soon. 
All feels a bit real now.

Love Linda xx

Hi Linda, treatment change OK, nearly 6 weeks now, fatigue and hot sweats, so going through the male menopause again,lol, and bone scan results encouraging, negative regarding ribs, and lower spine, they said, scan shows suspicious markers suggestive of cancer, I have damage from a broken back, lesions, arthritis and osteoporosis with multiple fractures to my lower spine, and I'm leaning towards a misinterpretation of the scans AGAIN.

Only 4 weeks to go, so how are you managing the waiting, I know it can be tough, but it will be here before you know it, and he will get his tattoos at his scan next week, they're painless, and its likely Nige's RT will be very similar to mine, likely a slightly higher dose to a larger part of the lower pelvic area,  again this is painless, and the radiographers are so nice and patient and will help you through treatment, and if you have any questions or concerns, they will answer them as well, and if I can help you only have to ask.

We, their  Nana and I have been to see our granddaughters twice, their gorgeous, and everyone doing well,  I wish I could send a photo, 

As Always my best wishes to you both.

love Eddie xx  

.

Hi Eddie - always good to hear from you & glad you’re getting through treatment. Your words always feel reassuring & make things seem doable & ok. Thank you again for your support. 
I think we’re both glad we have dates now - 4 weeks of rt. Hoping after that we’ll be able to plan a holiday . 
Delighted you’ve met your granddaughters - I don’t doubt they’re both beautiful!! It’s such a privilege to be grandparents isn’t it. I never had any sadly as both my parents were older when they had me but I love every minute of being a nanny to mine (3 boys & a girl) 

Anyway - take good care - keep well & many thanks.!

Love Linda xx

Hi Eddie - always good to hear from you & glad you’re getting through treatment. Your words always feel reassuring & make things seem doable & ok. Thank you again for your support. 
I think we’re both glad we have dates now - 4 weeks of rt. Hoping after that we’ll be able to plan a holiday . 
Delighted you’ve met your granddaughters - I don’t doubt they’re both beautiful!! It’s such a privilege to be grandparents isn’t it. I never had any sadly as both my parents were older when they had me but I love every minute of being a nanny to mine (3 boys & a girl) 

Anyway - take good care - keep well & many thanks.!

Love Linda xx