Pippin24 Goodness , that sounds so confusing! I hope you can get to speak to someone today. Are you on Patients Know Best? I get a lot of my letters through that which you can still access when you're away from home. I'm sure if you explain the situation…
Goodness NGS. That sounds uncomfortable. Sorry to hear you're going through this. Glad you've seen the breast team and it doesn't sound like they are overly concerned, so I would take some comfort from this. However, I know how uncomfortable rashes/allergic…
Goodness Pippin24 the side effects of zoledronic acid sound painful! I'm even more concerned to start Ibandronic Acid now! But so glad to hear the pain subsided later in the day. How often do you have to have the infusion? And yes, will keep you all posted…
Good morning all
Greeny80 Yes, still feeling ok after radio. Still no soreness or 'sunburn' effect. Just a little itchy around the nipple area, but nothing to write home about. I do get the odd twinge or stabbing pain, but it's random and isn't constant…
Hi everyone!
Carol1964 Glad you've finished radio and that you're feeling ok, Ive got one more week to go...so far feeling good but like you say i know you keep "cooking" as they said to me for a few weeks after..but so far so good! How long do you…
Morning all
Sorry for radio silence, work ramped up a bit last week and then after radiotherapy I was just zonked (more from the drive home than the treatment!).
Goodness Pippin24 , you have been in the wars! But so glad you are managing to get on…
Hi ladies,
Pippin24 That's great news you have a date and that you can go on holiday too. Hurrah! Where are you off to? Hope you have a fab time...and they absolutely wouldn't let you go if they thought there was any risk or it growing or getting…
Morning all
Goodness NGS the drains sound very uncomfortable, but as you say, all for a good cause and it will be worth it in the end. Hope the remaining recovery goes well and you can start inflating soon!
Pippin24 Hope the Phesgo injections continue…
Hello Barley24,
A very big welcome to our friendly community. Well done for getting through your first chemotherapy and immunotherapy! An important milestone and it's normal that you felt emotional. Keep strong, I just wanted you to know that you are…
Hi everyone!
Glad you all seem to be doing well!
NGS Fab news you are now cancer free...wishing you a super speedy recovery from your double masectomy,that must have been a long op..hope you get the drains removed on the 1st so that you can then…
Hey everyone!
Just checking in! Sorry have been pretty quiet...it's been crazy with school stuff at the moment as it's my daughters last year at her school so she has so many leaving things going on and general end of term stuff so the admin is off…
Morning all
Radiotherapy appointment was good Thanks. They want to give me 5 "normal" doses followed by 4 "boosts". The "normal" ones treat the whole breast area whereas the "boost" targets where the cancer was. I'm quite relieved, as I was expecting…
Oh wow! Good luck indeed NGS for your last chemo! Woohoo!!! Hope it goes well. And you too Pippin24 , just 2 more to go including this one.
So sorry to hear about the jaw pain NGS That must be awful. I'm dreading taking the Ibandronic acid because that…
Hi Pippin24 Immunotherapy is given by infusion, same as chemo, but it's much gentler on the body and shouldn't cause hair loss etc. Immunotherapy is given to help prevent the cancer returning or spreading. I've been having it alongside chemo all the time…
Morning all
That's great news you're all coming to the end of chemo. It's such an amazing feeling when you get there. A massive relief washes over you.
Sorry NGS that your taste has been off. Mine was bad with the docetaxel but ok with EC. Everyone…
