Thanks everyone for your reassurance, it really does help. I think I was worried as I know the cancer is still there at the moment, didn't want it to start increasing in size again, especially after going through all that chemo. But as you all say, they wouldn't risk leaving it so long if this was likely. I am on the phesgo injections, which apparently will keep this from happening. I have an oncology phone call on Monday, so I will delay booking flights until I know they are happy with date of surgery. Hoping to get the results of my ct lung scan too.

NGS, just wondered, do they use dissolvable stitches when you have surgery? Hope your healing is going well.

Carol, I hope you are feeling OK after your radiotherapy.

Greeny80, hope all is going well with your radiotherapy, nearly there!

Jolamine, thank you for your continues support, hope you are keeping well.

Hope you're all managing to stay cool in this heat, it has been a little too hot.xx

Hi Pippin 

how did your call go with the oncologist ? 
absolutely yes all stitches are dissolvable.  
things are getting tight now which is likely stitches healing.  It’s a weird feeling as I have sutures internally holding implant in place 

xx

Hi Pippin

I had my first zoledronic infusion in May and then surgery in July.  My surgeon was not concerned by this at all and I’m not aware of any complications from it.  

woohoo to booking the flights 

xxx

Thank you do much for your promp reply, I can relax now. I was worried if I had it tomorrow and shouldn't be having it yet, it might affect my surgery going ahead. I seem to be stressing more at the moment, can't wait to get back to my walking tomorrow. Hopefully will relax me a bit. Xx

Hi jolamine 

did you take letrazole after your mastectomy ?   I have suddenly come out in itchy rash around my scars.  Not a septic rash;  no temperature etc.  but only thing different is I started  letrazole last Tuesday.  

really do not want a trip to a and e on bank holiday Monday 

xx 

Hi NGS,

Yes, I did take Letrozole after my double mastectomy, but never had a rash around my scars. I hope that you managed to get through the Bank Holiday, without having to go to A & E. If so, why not phone your breast care nurse on Tuesday and see if she can do anything to help you? Please do let us know what she advises.

Kind regards,

Jolamine xx

Hi Pippin / Greeney / Carol and Jolamine

Gosh everyone this rollercoaster just never ends 

the rash has spread to both breasts along both scar lines.  It’s itchy and red. 
im not unwell and it’s not hot to touch 

I saw the breast team and they are unsure.  Not infection related but could potentially be allergic reaction to letrazole.   I’m seeing my surgical team Thursday for them to assess. 
they mentioned biopsy and now I’m in panic mode.  Is it inflammatory breast cancer in the remaining skin ? The fact that the surgeon found more cancer in my breast has totally freaked me out these last 2 weeks despite hi  “ removing it in mastectomy “ 

I’m also very worried if I have to stop letrazole.  What does that mean in terms of preventing recurrence.  

my return to some kind of normal feels so far off I’m struggling to find any positivity right now 

xx 

Hi just reading your comments earlier I was just wondering if you could be having an allergic reaction to the metal ports either side that you mentioned ,a lot of people are allergic to metal , regardless I really hope its nothing serious  and that there's a simple explanation .

Hi Jenny 

ah I hadn’t thought of this.  I just need an answer I guess.  The forever waiting and not knowing is the worst.   
xx

Yes of course you do ,it just seems strange that its both breasts ,It wouldn't surprise me at all if that's the cause of it ,its why I can't wear ear rings but I really hope its something along those lines xx

Hi NGS,

I'm sorry to hear that the rash has spread, but glad to hear that you have seen the breast team. I hope that your surgical team can give you more answers on Thursday. There are alternative treatments to Letrozole, so don't start worrying about what may never happen. Have you taken photos of the rash? This is a good way to keep an eye on progression - as they say "a picture paints a thousand words"

Not knowing, is always a worry, but here's hoping that there's a simple explanation.

Kind regards,

Jolamine xx

Goodness NGS.  That sounds uncomfortable.  Sorry to hear you're going through this.  Glad you've seen the breast team and it doesn't sound like they are overly concerned, so I would take some comfort from this.  However, I know how uncomfortable rashes/allergic reactions can be.  Hopefully they will get to the bottom of it.  And definitely follow Jolamine's advice and take photos.  Good luck with the surgical team on Thursday.  Let us know how you get on! 

 Pippin24  NGS  I saw my consultant yesterday and he has agreed I can have infusions  rather than tablets and has swapped me from ibandronic acid to zolendronic acid.  I start on Thursday.  How are you both feeling now?  I will have the first one at the same appointment as I have my immunotherapy, but am hoping it won't be too bad!!  I might take an overnight bag, just in case!

Hope everyone is doing well and enjoyed the bank holiday weekend. 

Carol xx

Goodness NGS.  That sounds uncomfortable.  Sorry to hear you're going through this.  Glad you've seen the breast team and it doesn't sound like they are overly concerned, so I would take some comfort from this.  However, I know how uncomfortable rashes/allergic reactions can be.  Hopefully they will get to the bottom of it.  And definitely follow Jolamine's advice and take photos.  Good luck with the surgical team on Thursday.  Let us know how you get on! 

 Pippin24  NGS  I saw my consultant yesterday and he has agreed I can have infusions  rather than tablets and has swapped me from ibandronic acid to zolendronic acid.  I start on Thursday.  How are you both feeling now?  I will have the first one at the same appointment as I have my immunotherapy, but am hoping it won't be too bad!!  I might take an overnight bag, just in case!

Hope everyone is doing well and enjoyed the bank holiday weekend. 

Carol xx