Morning everyone
Sorry for the radio silence. Just catching up on all the news now.
Pippin24 So glad you can get away for your holiday. It's a pain you still have had any clarity around phesgo injections, hopefully someone will have a definitive answer…
Hi ladies.
Pippin24 hoping you have a fantastic holiday. Take the time to relax and spend quality time with loved ones before next stage of your journey. Really pleased to hear CT scan stable. What a faff with the mixed communication. It's just additional…
Morning everyone. I hope you all had a good weekend.
I'm now day 4 after my Zoledronic acid infusion and my goodness they weren't lying about having flu-like symptoms! I woke up absolutely soaked on Saturday night and felt a bit nauseous. However I…
Hi Pippin24 Glad you've managed to schedule your echocardiogram but bummer re meds delivery! Hopefully someone will get back to you re collecting meds at the hospital. I take it no-one else will be at home on Monday to take them in for you?
You can…
Thankyou for the support everyone
I saw team again today and they remain not overly concerned. They do not think it relates to letrazole as limited to along my scars. Equally they said if allergic reaction to implant or ports would be whole breast and…
Morning everyone. Well, I had my first zoledronic acid infusion yesterday alongside immunotherapy. Think it went ok. I felt a bit sweaty and had a headache later in the evening and today feel a little queasy, but nothing major. Hoping it will pass with…
Pippin24 Goodness , that sounds so confusing! I hope you can get to speak to someone today. Are you on Patients Know Best? I get a lot of my letters through that which you can still access when you're away from home. I'm sure if you explain the situation…
Goodness NGS. That sounds uncomfortable. Sorry to hear you're going through this. Glad you've seen the breast team and it doesn't sound like they are overly concerned, so I would take some comfort from this. However, I know how uncomfortable rashes/allergic…
Goodness Pippin24 the side effects of zoledronic acid sound painful! I'm even more concerned to start Ibandronic Acid now! But so glad to hear the pain subsided later in the day. How often do you have to have the infusion? And yes, will keep you all posted…
Good morning all
Greeny80 Yes, still feeling ok after radio. Still no soreness or 'sunburn' effect. Just a little itchy around the nipple area, but nothing to write home about. I do get the odd twinge or stabbing pain, but it's random and isn't constant…
Hi everyone!
Carol1964 Glad you've finished radio and that you're feeling ok, Ive got one more week to go...so far feeling good but like you say i know you keep "cooking" as they said to me for a few weeks after..but so far so good! How long do you…
Morning all
Sorry for radio silence, work ramped up a bit last week and then after radiotherapy I was just zonked (more from the drive home than the treatment!).
Goodness Pippin24 , you have been in the wars! But so glad you are managing to get on…
Hi ladies,
Pippin24 That's great news you have a date and that you can go on holiday too. Hurrah! Where are you off to? Hope you have a fab time...and they absolutely wouldn't let you go if they thought there was any risk or it growing or getting…
Morning all
Goodness NGS the drains sound very uncomfortable, but as you say, all for a good cause and it will be worth it in the end. Hope the remaining recovery goes well and you can start inflating soon!
Pippin24 Hope the Phesgo injections continue…
Hello Barley24,
A very big welcome to our friendly community. Well done for getting through your first chemotherapy and immunotherapy! An important milestone and it's normal that you felt emotional. Keep strong, I just wanted you to know that you are…
