Hi Lucie8.

I should start out by saying I'm not a doctor and I have no medical qualifications.  However, I was treated for a tiny bladder cancer last year (I'm 66) and I've had two clear cystoscopies since surgery.

At your age (28) the incidence of bladder cancer is very very very tiny.  In fact, looking at the Bladder Cancer incidence by age page on this site, it's given as 0 per 100,000.  This puts the odds somewhere around a million to one.

I know you're worried about the microscopic blood, but I recall hearing a radio 4 programme a year or two ago where an experienced urologist explained that microscopic blood in the urine of people under 50 is rarely any cause for concern.  The usual pattern is the blood is discovered in the urine, the patient is referred to a urologist, tests are done and usually they find nothing wrong.

So please don't let your mind dwell on the possibility of cancer.  It's very remote indeed. 

Hi Telemando Thanks so much for your message I appreciate you taking the time to comment. It's great to hear that you have been given the all clear and hope this continues for you. 

I think Dr Google has put the frighteners on me! As it's not just small amounts of microscopic blood it's a lot. However I will do my very best to remain positive. 

Hi i went through this 2 years ago, if u go on mumsnet u will see lots of us did and none of us was found to have anything sinister. 

We were all told sime of us just do have microscopic blood in our wee.

I had cystoscopy and ultrasound of kidneys , bloods, 24 hr urine collection all perfect.

Try not to worry xx

Sorry, I didn't realise it was visible blood.  That's what sent me off to the urologist for tests.  While I was there, I was told that in 80% of cases of visible blood in urine, they do eliminate cancer as a possible cause, but never pin down the exact reason.  Unfortunately, I was one of the 20%, but mine was still caught very early.  80:20 is still good odds.

No problem, I appreciate any advice. I'm sorry to hear of your BC diagnosis. How are you now? 

I had a clear bladder cystoscopy about a month ago, so at the moment my bladder is fine.  Thanks for asking.

Hi Telemando,

I hope you're well. I had my Cytoscopy on Monday where a mass/growth was detected, I wasnt told anything it was just heavily photographed and I was told to wait for it to be passed to a doctor. Can I ask did they pre warn you it may be cancer straight after your Cytoscopy? Thanks Lucie 

Hi Telemando,

I hope you're well. I had my Cytoscopy on Monday where a mass/growth was detected, I wasnt told anything it was just heavily photographed and I was told to wait for it to be passed to a doctor. Can I ask did they pre warn you it may be cancer straight after your Cytoscopy? Thanks Lucie 

Hi Lucie

Yes. I was told there and then.

How large was your bladder mass?

I was seen by what I think was a student doctor, and when he asked the nurse to go and find a senior doctor was told they had gone home. It was around 1-2cm, kind of dome shaped and looked like a light pink raspberry I suppose with all of the bubbly bits on it. 

Hi Lucie. 

I wasn't seen by a student but by a qualified doctor, who immediately identified my cancer.  It looked like a fronded plant you'd see in an aquarium - quite pretty in fact.  I had TURBT surgery 6 weeks later and two clear cystoscopies so far; the latest just about 6-8 weeks ago. 

I hope whatever it is in your bladder is just as easily treated. 

Please keep us posted when you get some results.

Hi Telemando 

I've been told I'm being discharged from the hopsital, no explanations as to what the mass is. I will trust that they are the professionals. 

I hope you don't mind me updating you. Lucie 

Hi Lucie.

I admit I'm completely astonished by this.  They should have told you what's going on, and at least identified this growth as benign, although it's quite possible that there's a letter to follow which might give you more information.

However, I think that in your shoes I would talk to my GP - quite possibly he/she can now access your cystoscopy results on the computer, or may have received a letter from the hospital. 

Hi Telemando 

Thanks for your reply. I am too, I phone the doctors today to be told they have a letter dated 4th Jan saying everything was normal, so I'm at my wits end, and feeling like I've imagine the whole thing, even when I asked why they would photograph something if it was supposed to be there, the only response I get is I'm not entirely sure. I have requested a copy of my Cytoscopy findings and what they took a photo of, and if need be I will pay to go private. 

Maybe the cystoscopy report will shed more light on the situation, particularly if you have the photographs. 

I think that in your shoes I might want to go private, too.