Concerns about bladder cancer.

Hi everyone, 

I hope this is ok to post. I'm hoping to find some advice.

Around 8/9 weeks ago I began having an urgency to go to the toilet, I couldn't hold it at all, and I had to urinate very frequently. (I'm 28 years old).

I didn't have any pain going to the toilet but would often feel like I hadn't urinated it all out. Around 2 weeks after this I had pain in my upper back, it felt like it shook my whole ribcage. 

I booked a doctors appointment, and did a urine sample and was told I had an extremely large amount of microscopic blood in my urine but no infection. I explained about the back pain and was told by the doctors where I was describing the pain was not near my kidneys at all, however she would put it down to a kidney stone and I was sent for a CT Scan (without dye). 

I went for the scan and was told I had the all clear but symptoms once again kept reoccurring, except I no longer had any upper back pain. I have since had antibiotics in the hope it could of been an infection not picked up, however once again upon repeating my urine sample, still lots of blood and no infection. However my frequency has eased but I still have the urgency to go to the toilet, and an agonising pain in my right hip/lower back. 

Has anyone on here who has been diagnosed with bladder cancer only ever had microscopic blood in there urine? 

My doctors has told me not to show any concern, however I'm a little worries why there is still so much microscopic blood in my urine? 

 

Thanks for reading.  Lucie 

 

Update ****

I went for a Cytoscopy on Monday, where a growth/mass was detected in my bladder which has been photographed. I was told to go away and someone would be in touch, so I'm waiting to hear from a doctor as to what this might be. 

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  • Hi, I am just being referred for similar reasons. I initially thought I had a urine infection, had antibiotics and handed in a urine sample showed high levels blood but no infection. GP didn't actually tell me as assumed it was my period which wasn't the case. 8 weeks on still having blood, only once have I visibly seen it rest is microscopic. 

     

    I'm 24, doctors weren't very helpful as said I have no infection so no further action. I don't think they're concerned about blood on its own in younger people, but with other symptoms I've read should be investigated. I have urgency, massively increased frequency & discomfort and was upset that doctors were saying no further action so I called them again and now having an urgent referral after the doctor I spoke to today said the urine samples kept being put under period when I haven't been on a period during any of them. 

     

    I have my urology appt next Tuesday afternoon. Do you have any follow ups booked? I hope you get an answer it's very frustrating 

  • Hi Bunny06

    Sorry to hear your experiencing the same problems. Have you had any results back? 

    I havent had any further tests yet just a letter from the hospital saying my referral is being reviewed, and they will decide whether they feel it needs to be investigated further. Which is very frustrating! I understand the risk of it being something cancerous is rare in young people but it still happens, so I'll be persisting with the issue. 

  • I had my first referral appt today, urologist advised I need a cystoscopy so waiting for the appointment for that, he's put it through as urgent could take up to 3 months. 

     

    It is very frustrating isn't it, I hope you don't have long to wait for any help

  • I had the flexible cystoscopy today. If you need to talk about it. I'm here. 

  • Thank you, I hope it went ok for you? I'm quite nervous about the actual procedure, I've had internal (vaginal) ultrasounds before and colposcopy treatment for endometriosis but the thought of something going up and into the bladder is really making me cringe! I think it's because it's really quite painful to wee at the moment and burns/feels sore afterwards I'm just imaging it to be painful also. 

  • Being completely honest...the procedure didn't hurt at all. I hardly felt anything. Afterwards, I was a little sore and it hurt to sit down so I just moved around until it was easier. I had a bath when home and now there is no pain at all. I was very concerned about how uncomfortable it would be but honestly, I hardly felt a thing. 

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  • Being completely honest...the procedure didn't hurt at all. I hardly felt anything. Afterwards, I was a little sore and it hurt to sit down so I just moved around until it was easier. I had a bath when home and now there is no pain at all. I was very concerned about how uncomfortable it would be but honestly, I hardly felt a thing. 

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