Phyllodes Tumour - anyone else had one of these?

So I was diagnosed with a phyllodes tumour in April. After biopsy it wasn't clear if benign. Either way it needed to be removed. Covid meant a long wait but I finally had my lumpectomy last Monday. All went well now just waiting for the results. I have an appointment on Thursday afternoon. The waiting is just the absolute worst part isn't it. Surgery was a doddle compared to this wait where you can do nothing but watch the hours tick by. Anybody else on here have experience with a phyllodes tumour? I understand they are quite rare and only around 1% of women get them. 

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  • Oh no sorry to hear this. Stay positive though. I found a new lump in December and it turned out to be cysts around my scar tissue. All harmless. I am on a great group on Facebook. It's called phyllodes support group. Honestly they all know what we are going through and it's a fantastic group of women with amazing knowledge. I'm thinking of you and send you lots of love and hope it's nothing to worry about x

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