Phyllodes Tumour - anyone else had one of these?

So I was diagnosed with a phyllodes tumour in April. After biopsy it wasn't clear if benign. Either way it needed to be removed. Covid meant a long wait but I finally had my lumpectomy last Monday. All went well now just waiting for the results. I have an appointment on Thursday afternoon. The waiting is just the absolute worst part isn't it. Surgery was a doddle compared to this wait where you can do nothing but watch the hours tick by. Anybody else on here have experience with a phyllodes tumour? I understand they are quite rare and only around 1% of women get them. 

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  • Hi...  

    I had a phylodes tumour diagnosed October 2018 with borderline cells so had it removed and all was ok, had my routine yearly mammogram in November 2019 and all clear  until about 6 weeks ago I found another lump in the same place, had all the tests and it's a reoccurrence of the phylodes I'm due in surgery on Monday all being well after my covid test today.... My own doctor hadn't heard of it until my diagnosis and had to do a wee bit research, 

    Emily x

  • Sorry to hear this Emily. I'll keep my fingers crossed for good news for you and I hope the surgery goes well. Not ideal having surgery during a pandemic is it! Let me know how U get on and I'm here if you ever want to chat.

     

    take care, Nikki x

  • Hi..... surgery went well, just the anesthetic I don't do well with so bad 10 days of feeling yuk..... results all good so back to just checking myself and then back to clinic next year... couldn't fault anyone or anything given the current situation with covid everything went according to plan... hope your staying safe....

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  • Hi..... surgery went well, just the anesthetic I don't do well with so bad 10 days of feeling yuk..... results all good so back to just checking myself and then back to clinic next year... couldn't fault anyone or anything given the current situation with covid everything went according to plan... hope your staying safe....

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