Paget's disease

Hi everyone 

I have been experiencing severe itching in my left breast (nipple area) for a few weeks . And both breast are very swollen, sore and tender (not unusual for me)

but the left moreso.

i have no rash or other symptoms apart from lumpy nipple ducts at bottom of breast. I have no rash /scaling or bleeding or discharge . I had mammogram , ultra sound both showed no lumps but an area of dense tissue underneath the nipple area where I am itching . I have biopsy this week.

Extremely worried it could be inflammatory breast cancer or pagets has anyone else experienced this ?

as it appears to be quite rare . Any advice would be welcome thank you for reading xx 

Parents
  • Hi,

    I was diagnosed with inflammatory breast cancer on Wednesday last week. I started off with itching of both nipples, then over a short time the right breast became swollen and sore to touch. I had my tests mid December (mammogram, biopsy, ultrasound) then had the long wait over Christmas for the results. I am booked in for the CT and Bone scans tomorrow to check for spread. I have been told that for IBC, I have to have chemotherapy first and that will start the week after next.

    I hope your biopsy goes well and that you get the results quickly. Stay positive. I have tried to keep busy and maintain a positive mindset, which has helped and hopefully will continue to help me over the coming weeks! 

    Take Care,

    Michelle X

  • Hi Michelle x

     

    thank k you so much for replying and sharing your story with us x an incredibly worrying time . It sounds as though your treatment is moving quickly which has to be good news x 

    i too have convinced myself this is what I have - they haven’t given me any other alternatives - I’m just so confused as I have no other symptoms apart from soreness, swelling and lumps underneath the nipple in the milk ducts I really have no idea  -  hopefully biopsy won’t take long to come back . 

    Best of luck for tomorrow - one day at a time is all

    we can do please keep us posted x lots of love to you xxx

Reply
  • Hi Michelle x

     

    thank k you so much for replying and sharing your story with us x an incredibly worrying time . It sounds as though your treatment is moving quickly which has to be good news x 

    i too have convinced myself this is what I have - they haven’t given me any other alternatives - I’m just so confused as I have no other symptoms apart from soreness, swelling and lumps underneath the nipple in the milk ducts I really have no idea  -  hopefully biopsy won’t take long to come back . 

    Best of luck for tomorrow - one day at a time is all

    we can do please keep us posted x lots of love to you xxx

Children
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