Paget's disease

Hi everyone 

I have been experiencing severe itching in my left breast (nipple area) for a few weeks . And both breast are very swollen, sore and tender (not unusual for me)

but the left moreso.

i have no rash or other symptoms apart from lumpy nipple ducts at bottom of breast. I have no rash /scaling or bleeding or discharge . I had mammogram , ultra sound both showed no lumps but an area of dense tissue underneath the nipple area where I am itching . I have biopsy this week.

Extremely worried it could be inflammatory breast cancer or pagets has anyone else experienced this ?

as it appears to be quite rare . Any advice would be welcome thank you for reading xx 

Parents
  • Hi,

    I was diagnosed with inflammatory breast cancer on Wednesday last week. I started off with itching of both nipples, then over a short time the right breast became swollen and sore to touch. I had my tests mid December (mammogram, biopsy, ultrasound) then had the long wait over Christmas for the results. I am booked in for the CT and Bone scans tomorrow to check for spread. I have been told that for IBC, I have to have chemotherapy first and that will start the week after next.

    I hope your biopsy goes well and that you get the results quickly. Stay positive. I have tried to keep busy and maintain a positive mindset, which has helped and hopefully will continue to help me over the coming weeks! 

    Take Care,

    Michelle X

  • It's a shock isn't it...I sat there not believing my ears....I will be keeping everything crossed for you....this forum has been my sanity....xxxx

  • Hi Marlyn,

    It is, but tbh I had been on google so much over Christmas I thought it was IBC! When the consultant told me I said that I knew it was, he seemed surprised as if someone had already told me. Your don't look at Dr Google is good advice. Since last week I have only looked at this forum as it wouldn't take much for me to link every ache or twinge with the BC diagnosis. This website has been invaluable for my sanity. X

Reply
  • Hi Marlyn,

    It is, but tbh I had been on google so much over Christmas I thought it was IBC! When the consultant told me I said that I knew it was, he seemed surprised as if someone had already told me. Your don't look at Dr Google is good advice. Since last week I have only looked at this forum as it wouldn't take much for me to link every ache or twinge with the BC diagnosis. This website has been invaluable for my sanity. X

Children