Paget's disease

Hi everyone 

I have been experiencing severe itching in my left breast (nipple area) for a few weeks . And both breast are very swollen, sore and tender (not unusual for me)

but the left moreso.

i have no rash or other symptoms apart from lumpy nipple ducts at bottom of breast. I have no rash /scaling or bleeding or discharge . I had mammogram , ultra sound both showed no lumps but an area of dense tissue underneath the nipple area where I am itching . I have biopsy this week.

Extremely worried it could be inflammatory breast cancer or pagets has anyone else experienced this ?

as it appears to be quite rare . Any advice would be welcome thank you for reading xx 

Parents
  • Hello, I initially went to see my doctor ref a breast lump ( which did turn out to be cancer) but funnily enough my left nipple had been itching for a good few weeks so I mentioned that too, I had also read about pagets and had convinced myself I had it!  But 3 mammograms and an ultrasound later proved not ( thank goodness)  I googled pictures of pagets and mine didn't look anything like them....no rash( except where I had been scratching) no discharge....nothing.....it was a relief to have The tests.....the biopsy I found completely painless....is it a core biopsy your having? Let us know what happens? Fingers crossed everything is ok...xxxx

    s

  • Hi Marlyn,

     

    thank you you so much for replying x I’m having a punch biopsy I think , just no idea what’s going on and it’s all such a minefield I can’t keep off internet which is driving me just as mad as the itching ha x how are you getting on now ? Xx

  • I had my lumpectomy on Thursday and recovering pretty well, I won't know exactly what my treatment plan is for another 2 weeks.....isn't the waiting agonising??? I really do try and stay off evil dr google, it gets me more and more worked up! Yes, the itching can be intense, my chemical gave me a steroid cream which helped enormously, but you mustn't use it for more than a week....the NHS have been fantastic as far as I'm concerned...you couldn't be in better hands xxxx

  • Ahh Marlyn , 

    thank you so much again for your reply , I must admit I didn’t expect any so it’s just so reassuring to know others are there and going through same process x

    2 weeks seems an age to wait for your plan. But you are right I must stay off the evil internet or that will drive me mad ! Take it easy, keep busy busy  and please keep us updated with your treatment xxx

    take care sending hugs x

Reply
  • Ahh Marlyn , 

    thank you so much again for your reply , I must admit I didn’t expect any so it’s just so reassuring to know others are there and going through same process x

    2 weeks seems an age to wait for your plan. But you are right I must stay off the evil internet or that will drive me mad ! Take it easy, keep busy busy  and please keep us updated with your treatment xxx

    take care sending hugs x

Children
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