angiomyolipoma kidney tumour?

A few months ago I started getting uti symptoms which are still ongoing. I had an ultrasound last week and it picked up a 4mm shadow on my left kidney. The doctors report said they believe it’s a angiomyolipoma. I stopped googling this shortly after I started as it terrified me with things like haemorrhaging etc. I’m an otherwise healthy 35yo woman. Has anyone had experience with one of these? I’m going to be having further tests in the coming weeks so they can rule out other things. I can’t help feeling that 4mm is really small to give that diagnosis based on an ultrasound, it’s apparently quite a rare benign tumour. I’m just really scared and wanted to see if anyone out there’s had one of these and knows anything about these/kidney ultrasounds? Thank you x

  • Hi I am new here I have kidney angiomyolipoma 9cm doctor recommended embolization would be tge best option rather than removing my whole kidney. I'm going holiday in April for 3 weeks does anyone think it's safe to go.my kidney function is 61 please help as I'm worried I do get pain at tge side and back sometimes 

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    Hi Kushidali,

    A very warm welcome to our forum. The best person to answer your question is your consultant. S/he will have all your medical records and should be able to say whether or not this is a good idea.

    Please keep in touch and let us know what s/he says. We are always here for you.

    Kind regards,
    Jolamine xx

  • I have also been diagnosed  qith an angiomyolipoma 4mm x 3.5 I'm having severe groin pain they were checking foe endrometial  cancer which I've had biopsies  for But this pain is what is really bothering  me its there 24 7 I've got dr appointment on Wednesday  is there anything I need to ask.They say suggestive  angiomyolipoma  on the ultrasound  and so a follow  up on 12 weeks but I can't live with this constant  pain for 12 weeks I'm a 69 yr old lady can anyone tell.me what to Ask  dr for next steps 

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    Hi MC1,

    I am sorry to hear that you are undergoing tests for this too. Have you been given any medication for the pain? When you see your GP on Wednesday make sure that you tell him that you can't cope with this constant pain for another 12 weeks and ask for something to ease it. You could also ask if there is anything you can do to change your diet, which might help.

    I don't know a lot about this condition, so cannot suggest any other salient points to discuss. If you want to know more, why not phone one of the nurses on this site? They are available from Monday - Friday, 9.00am - 5.00pm. Their number is 0808 800 4040 or you can email them.

    Have you had the results of your biopsies yet? Please keep in touch and let us know how you get on. As you know, we are always here for you.

    Kind regards,

    Jolamine xx

  • I have this on top of having biopsies  for suspected  endrometial  cancer so I am going drs to have a word with him I've also got a small hernia but it needs sorting g I'm really down in pain and crying a lot I'm just hoping the biops results off my womb come back quickly so that will take a lot of worry off mu mind 

  • No it was a week on Saturday  the biopsies were done they said about 2 weeks I just want some peace of mind 

  • Hi MC1,

    Crying a lot is something that most of us do, whilst we're waiting for biopsy results. This is a very stressful time and crying is a release valve, so it's not such a bad thing. Your results should be back shortly. Regardless of what the outcome is, you'll feel better once you know - we all do. 

    Please keep in touch and let us know how you get on. 

    Kind regards,

    Jolamine xx

  •  cariad how did you go on with your angiomyolipoma  I have only just been diagnosed I'm a elderly  lady and really worried 

  • haz I have just been diagnosed  with a cyst and angiomyolipoma  on my.left kidney how did you go on with yours

  • Hi I also have a 10cm aml in my right kidney I'm considering for embolization but the doctors are freaking me out saying by doing this I may ultimately lose my whole kidney, believe me I'm soo worried don't know what to do, or should I just leave it as it is, 

    Did the doctor say that to you too about the risks and how big was your aml kindly can you let me know