hi there 

i was disgnosed with this last year too. I was told that its something i have probably had since haviing ny children and it wont kill me. The hospital said they will keep an eye on it and i only need to worry if it gets bigger. They seem to think it has been there years and is harmless if it doesnt grow. I was told it was an incidental find as they were looking for something else when they found it. I have just accepted it is there but i do not worry about it as it causes me no pain. Hopefully your results will be fine x

hi there 

i was disgnosed with this last year too. I was told that its something i have probably had since haviing ny children and it wont kill me. The hospital said they will keep an eye on it and i only need to worry if it gets bigger. They seem to think it has been there years and is harmless if it doesnt grow. I was told it was an incidental find as they were looking for something else when they found it. I have just accepted it is there but i do not worry about it as it causes me no pain. Hopefully your results will be fine x

Thank you for your reply Cariad that’s really reassuring. Did they tell you if this was quite common? How big is yours and how often do you have it monitored if it’s okay to ask. Is there a connection between having children and these for them to say that? My only worry is that I coincidently had a kidney ultrasound last February and it wasn’t picked up on then so looks like it’s new. Did they do any other tests with you to confirm diagnosis? Sorry for all the questions... I’d rather hear it from someone who’s actually got one than google. There doesn’t seem to be much on them on here after searching. Thank you so much x

Hi Coco

they said that they are quite rare but you get them in your childbearing years. My children are 16 and 18 so mine must have been there a while. Mine is 4mm like yours. I was referrrd to a kidney specialist and had a scan. When i went to see him he said they had had a meeting about me and decided there was no need for concern. He indicated they would monitor it on a yearly basis to check for growth but was quite sure it would not grow. That was approx 12 months ago and they have not contacted me so i may just chase it up.please try not to worry. When they say the word tumour its hard not to panic, but we are kucky that they are benign. Dont worry about asking questions, am happy to helpbif i can. Take care

 cariad how did you go on with your angiomyolipoma  I have only just been diagnosed I'm a elderly  lady and really worried