I had a large AML in 2015in my right kidney  had three embolizations over tweleve months it has shrunk but my scan today showed it had grown a bit a small one lower down hasnt changed but I have one now ih the left kidney please take it seriously mine started to heamorage take care 

I had a large AML in 2015in my right kidney  had three embolizations over tweleve months it has shrunk but my scan today showed it had grown a bit a small one lower down hasnt changed but I have one now ih the left kidney please take it seriously mine started to heamorage take care 

Hi annie456

So sorry to hear you are having issues with this.  My urologist said that bleeds are rare and the last one he saw was some 2 years ago (in people who don't have TS  or any other condition).  I am waiting for an ultrasound (next week) as the blood around the kidney needed to disperse first for a clear picture, but I have been feeling much better and have started doing a bit more than just reading!! I have started to experience a little discomfort again these last 3 days and obviously I am worried of another bleed and the whole embolization thing (not good with needles/hospitals etc) and I have tried to find out as much as possible.  My findings are that tumours over 4cm start to give us grief - did they say how big yours was?  I don't quite understand why they haven't taken yours out with the issues you're having...? Every heamorrhage is a rush to hospital isn't it? Do you have to take it easy? How is it affecting your life?

Best wishes

Hi mine when diagnosed was 9.7 by 7.5 by 6.4  because it was so big on the outside them did three embelizations  over twelve months you don't see any needles as they do it with a catheter in your groin I had the same surgeon and became friendly as you are awake and his mother rang from India he had to answer told her to ring later he said she drove him mad all the time so we had a bit of a laugh and the second time he had a collegue who he trained from Canada so I had three working on me but everyone chats to make you feel at ease and you should have a morphine driver in so you don't feel anything you can watch on a screen it's very intriget work I found it so  interesting .i felt poorly for a couple of weeks after aches and pains but not enough to put me to bed then back to work after 6weeks you have a BP monetor on all the time doing your BP often it's not very pleasant but my kidney function is good so I am very grateful I have checks every 6 months and my recent one showed it was a liltle bigger and I have a small one in my left kidney I've been fine since so I am waiting to see what's next please don't stress it's got to be done better for your health xx

Hi I also have a 10cm aml in my right kidney I'm considering for embolization but the doctors are freaking me out saying by doing this I may ultimately lose my whole kidney, believe me I'm soo worried don't know what to do, or should I just leave it as it is, 

Did the doctor say that to you too about the risks and how big was your aml kindly can you let me know 

Hi annie456

Exactly the same thing doctors said to me last Thursday when I went to see them ,now they r recommended me to have my whole kidney removed it's freaking me out crying all day long don't know what to do, I said to doctor I'll just leave it as it is and you may monitor me ,soon I said that he said if it bleeds yiu can die omg it freaked me out so he gave me a month's time to decide   please can yiu let me know what you have decided about yours thanks

Annie456 doctor said if I leave it it might bleed and I might collapse or die,and if I do  embolization I will loose my kidney,  please let me know what did you decide please let me soo thank yiu