Hello my dear ,

You are certainly not alone in being confused about what's happening  , but thankfully the Multi Discipline Team meeting will be discussing your case soon . You can phone your CNS at anytime , but the surgeon will be telling you the details of your situation at an appointment shortly after .

The 2 week pathway just means you must be seen within 2 weeks of the referral .... there are other targets for the hospital,  but they're not your worry .

Make sure you have someone with you at any appointments .... and ask if you can record what's being said ..... or get a friend to take notes to look at later .You'll never be able to recall it all   especially the medical terms .

How are you with roller coaster rides ? This is going to feel like you're on one .... but young people are really good good at dealing with problems. It will all make sense eventually . I  pray that ll goes well and that the NHS looks after you as well as they have done for my hubby  .

Zillah

Hi my lovely,

Thank you for your reply, it means a lot. Thank you for explaining it feels like everyone is in a rush so not much is being explained. You are right about the rollercoaster currently, between hospital appointments. I hope you and your husband are doing well, take care x 

Good morning , thanks for the update  , hoping all goes well . Just a little thought ..... our hospital has a specific day of the week for MDT meets . Do you know what day your Dr's is? The secretary will be able to tell you if not . 

Have a good week and keep busy with positive things. 

Zillah 

Thank you for getting back to me. No I am not sure, I might give my CNS a call and see if she has any idea. Thank you I shall try, have a good week x

Morning, I received a letter from my consultant that was written for my GP it states a 7cm cyst that has solid and papillary features. Does anyone know what that means? x

 Thanks for posting. 

Well ,   that's puzzling isn't it ? I sometimes think that they use a secret language between medics , just to confuse us   . 

I had an 8cm "septated " cyst 10 years ago. whatever that meant.  Found by accident on CT scan for diverticulitis in July ....anyway  it was removed in early October....and biopsied  , which showed it was not cancer. 

Maybe you could put a post in the" ask the nurses " forum on here ? Or resort to a dictionary... I think papillary means little bumps a bit like fingers ..... 

Anyway  , I expect what it also means that you will very soon will be invited to an appointment when it will be explained by the experts  . 

Lovely sunny day here  hope you have the same .

Zillah 

Thanks for getting back to me, I appreciate it. Yes, truly puzzling. I am glad that your cyst was not cancerous. 

That is a good shout to put the question in the nurses chat. Thank you, the weather is better here now still a little cold, have a lovely day x

Hello,   just checking in on you . Hope you're coping OK and getting some answers now . 

Thinking of you still 

Zillah 

Hi thank you. I had my appointment yesterday. They have said its no longer a cyst but tumour and showing signs of cancer. So a lot to take in. I will be having surgery within 4-6 weeks. I am not getting key surgery either as it is so big my surgeon does not want to risk it. Still not 100% that it is cancer but that is my update. Sorry it is not a fantastic one. Take care x

Hello my dear  girl ,

I'm so very sorry that you have had this bad news . What a shock for you and your family. I'm pleased your doctor is dealing with your case quickly, even though the surgery might seem a long way off. The time will pass pretty fast as you make preparations. 

Please keep in mind that they won't really know until your surgery happens and biopsy results come back 

. If you recall I had that same surgery in 2014   ,as my cyst was cancer suspect  ......and my results were clear . I had already had a hysterectomy 20 + years earlier  , so no keyhole due to old scar tissue . It was OK. 

Now , you are wonderfully young,  so they'll be carefully thinking about your future plans  I'm sure.  Your youth also means you will  recover from surgery really well . 

Be brave and remember "Your strength will lie in keeping calm and showing trust " .

In my prayers daily ,

Zillah 

Hi my lovely,

Thank you for your lovely email. I do really appreciate your kind words. I am grateful they are moving quickly even though it is not confirmed to be cancer. How was your recovery time if you don't mind me asking? Yes the goal is to take my ovary at this stage and the tumour. If the biopsy that they are doing while doing surgery comes up it is cancer, I think they will do a secondary surgery but take lymph nodes. I like that quote it is calming. Thank you again x    

I’m sorry that it wasn’t better news. However it’s still an unknown, as all all tumours until they come out, so keeping everything crossed for you. 
it’s good news they are not going to try keyhole as I know that the concern is they spread something if they don’t get a clear run at it. Hopeful for a speedy recovery for you after your surgery. 
do you need to have further testing or appointments prior to that surgery date? 

I’m sorry that it wasn’t better news. However it’s still an unknown, as all all tumours until they come out, so keeping everything crossed for you. 
it’s good news they are not going to try keyhole as I know that the concern is they spread something if they don’t get a clear run at it. Hopeful for a speedy recovery for you after your surgery. 
do you need to have further testing or appointments prior to that surgery date? 

Thank you, I always think it could be worse. I am not there yet and it is been dealt with. I asked if it turns out to be cancerous would I need more treatment, so I know a rough estimate plan of what happens if it is a borderline tumour or if it is cancer. I had my pre-op assessment yesterday so no more testing until my surgery. The oncology nurse who is so lovely is going to call me when there is a rough date so that is positive. Thank you for your reply, it means a lot x

What did they say about further treatment? That’s great you had your pre op and are ready to go, the sooner the better. Keeping everything crossed for you. A nice short time in hospital too. Treat yourself to some new comfies going in. Keep in touch x