8cm Complex Ovarian Cyst with CA125 of 51 - Absolutely terrified!!

I posted on here a few days ago after I found out unexpectedly that I had a large complex ovarian cyst. The consultant thinks it could a dermoid cyst but can't determine this for sure and is sending me for an MRI scan. In the meantime, my CA125 has come back raised at 51!!! I'm postmenopausal which just adds even more risk into the mix and I just feel like the odds are stacking up against me. I've had no symptoms and only got checked out because of a tiny amount of postmenopausal bleeding. I'm all over the place.

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  • Hello jembers, I wrote on your first post as I also have an incidental mass very similar. 
    when I had my CA125 test I was told it is very likely for a raised amount even if only a cyst as it can signal other things like pelvic inflammatory. The levels can be in their hundreds just on a period so actually the fact that you went to the docs with some post menopause bleeding might actual explain the higher level.

    when is your MRI? I am also awaiting mine, I had to have further bloods taken on wed and awaiting my MRI now. 2-4 weeks. 
    more waiting…..

    keeping everything crossed for us! 

  • Hi cloudy1986, thanks so much for checking in with me, it means a lot. I've been given an appointment for 23rd December (Merry Christmas!!) I'm clearly on an urgent 2 week wait due to the nature of my cyst, my age and my blood test results. It's very hard not to fear the worst. I'm trying to remind myself that my situation could be completely benign, but due to my terrible habit of googling, I've convinced myself that it's something terrible! I am genuinely sending as many positive thoughts to both of us as I possibly can. X

  • How is your recovering going? I’m day 5 recovery now. Completely off painkillers. Managed a 15 min walk/shuffle last night and this morning with the dog. Dressings all off and airing, still have not worn trousers or regular clothes. Had my second shower today which makes me feel better. Still tired but eating and drinking fine and managing the bathroom quite ok. Managing small household chores like the dishes etc. incisions are healing nicely, the one at my belly button is certainly the biggest but even that is about 1cm below it. Still feel like someone has been digging about with a trowel in the pelvis but the gas pain is gone. Getting better each day but I’m getting bored of being at home! Hope you are well on the road to recovery too x  

  • Glad to hear you're making good progress. I started to feel a lot more comfortable yesterday, as the shoulder tip pain has more or less gone. I haven't needed any painkillers so far today, and although my belly button area is quite tender, it's manageable. I do keep getting colicky, gas pains in that area, but nothing too bad. The bruising is more obvious today and I've got a swollen bulge above my belly button that I'm assuming is normal and will go down in time. I can't say I had a completely flat stomach in the first place, but it's quite noticeable at the moment when I stand side on in the mirror. I'm going for another shower in a minute and will then embark on my first outside walk. I'm getting really restless and, even though I'm a bit slow and tired at the moment, I'm not enjoying sitting around doing nothing. I'm usually out and about all the time, so it's quite annoying not being able to do all my usual stuff. I'm conscious, though, of not doing too much too soon. X

  • We sound very similar in the not being able to sit around. Even being able to potter about in the garden is difficult as I just want to start weeding or hoovering when I’m indoors. Haha. Are you managing to wear normal clothes and trousers? I am still in my dressing gown at home or my long dress’s when out and about. I am too nervous to put on even underwear incase it rubs on the incisions x 

  • Hello,  I am still away and not sure what is going on with my phone but I hadn't realised lots of posts had been shared. I'm glad everyone is doing so well. I appreciate you starting this chat off Jembers and for everyone sharing their stories, I can't tell you all so much how it has helped me, I will always appreciate everyone's honesty, compassion and friendliness. Please keep sharing updates on your progress everyone xx

  • Hey all, hope everyone is doing well! 

    I got my ca125 back, it's only 7  I know it's not 100% that I have nothing to worry about but I do feel a little relieved! Only a month until my surgery too so not too long to wait for a 100% answer. 

  • Brilliant! That must have made you feel a lot better. August will be here in a flash, and then you'll be able to move on. Keep in touch and in the meantime, if you need a chat, we'll all be here. X

  • That’s great news.very very low. Not long at all now. Lovely to think in a month it will be all over x 

  • I've been wearing some baggy jogging bottoms around the house and when I went out for my first walk, I wore a dress. I had been wearing pants that sat below the belly button and then tried some that covered my belly button. I actually think the below belly button ones are more comfortable. Over the top seems to cause too much friction!

  • Hi, how's it going? Hope you're steadily starting to make progress. I'm feeling much more comfortable now and had an appointment at the GP yesterday to check my wounds are healing ok. I've literally just done my first sneeze since before Friday last week. No idea how I've managed to last until now, because I suffer from hayfever. I thought it would hurt, but it was absolutely fine! I'm off to B&Q to buy a new house plant in a few minutes and then I'll try to get another little walk around this afternoon. I've been thinking about calyxa and hoping she's doing ok. Hope anyone else reading this is doing ok too. X

  • Yeah, been thinking of you guys recovering and of calyxa. All reading and those with uncertain diagnoses too.

    I'm doing okay. Need to sleep more. Shame I can't share a photo because I'd show what a nothing my scar is 4 years down the line even though it's about 6 inches long. I didn't bother with oils and moisturizer and it's still receded fine. Some people swear by biooil.

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  • Yeah, been thinking of you guys recovering and of calyxa. All reading and those with uncertain diagnoses too.

    I'm doing okay. Need to sleep more. Shame I can't share a photo because I'd show what a nothing my scar is 4 years down the line even though it's about 6 inches long. I didn't bother with oils and moisturizer and it's still receded fine. Some people swear by biooil.

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