8cm Complex Ovarian Cyst with CA125 of 51 - Absolutely terrified!!

I posted on here a few days ago after I found out unexpectedly that I had a large complex ovarian cyst. The consultant thinks it could a dermoid cyst but can't determine this for sure and is sending me for an MRI scan. In the meantime, my CA125 has come back raised at 51!!! I'm postmenopausal which just adds even more risk into the mix and I just feel like the odds are stacking up against me. I've had no symptoms and only got checked out because of a tiny amount of postmenopausal bleeding. I'm all over the place.

  • Offline in reply to calyxa

    Good luck this afternoon, calyxa, I hope it goes smoothly though I know from experience they tend not to report immediately. Things are stressful my end and I'm not being the ideal partner at times but plodding on x

  • Offline in reply to Lyns21

    you are the ideal partner - keep the faith - its so difficult I know, I tried to be very positive and make jokes around my sister when she was first diagnosed and now she is doing the same for me! Plodding is often the best way - you have to be strong x  

    No real news on the scan front she was happy with the cysts on my liver just been cysts so thats good but she also mentioned fluid in my abdomen which is not so good but strangely that wasnt on the CT so heh ho - just have to wait now I guess x

  • So sorry to read you are stressing with your partner finding a new lump. What is the plan?x

  • Only a couple of weeks now until you see the consultant! How you feeling? I had my pre op appointment last Thursday. So I know that I’m in within 6 months as that’s how long it’s valid for. I’ve been today and bought some tablets for the gas pain and silicon gel for scars. I’m also going to buy a pregnancy pillow for support. Just want to be prepared as I can! 

  • He's seeing the oncologist tomorrow. We always end up squabbling when he's stressed about health. I dunno, he gets personal so it's hard. I've triggered it this time though. I over reacted because my mind just isn't coping. I thought he might be a miracle and stay clear but... Also got my own health worries as I'm having swallowing difficulties which is making me cough all the time. Might be a side effect of my medication but I don't know. I just want my kids' dad to be okay.

  • Did they give you the wash stuff? My pre op they did but I've known lots of people to either not be told about it or not because given it.

  • My pre op she didn’t even seem to know what my op was! It was a height weight and some questions that will go to an anaesthesiologist. So no, please enlighten me! 
    Will you to the oncologist too with him or does he like to go alone? 
    ask your GP for an endoscopy if you are having trouble swallowing. I am sure this stress isn’t helping but don’t let them write it off as that!x

  • There's a lotion called octenisan that you use like shower gel before the op to help kill bugs but I don't know how vital it is as so many aren't advised to use it.

    His mum's going with him. Trying not to feel hurt by it but it's not practical either as I need to know the ins and outs.

    I started having problems before the new lump appeared. It's really weird. I hope it's stress.

  • Offline in reply to calyxa

    I'm sorry there's the additional complication of fluid. That must add additional concern. I guess you have to wait for the consultant to feed back on that. Huge hug, stay strong xx

  • Offline in reply to Lyns21

    Thanks Lyns, its weird as CT stated no fluid and ultrasound report does but as you say I have to wait for MDT, I called the secretary and she has promised to call me as soon as she hears anything which is great - and you too hun xx