Hello jembers, I wrote on your first post as I also have an incidental mass very similar. 
when I had my CA125 test I was told it is very likely for a raised amount even if only a cyst as it can signal other things like pelvic inflammatory. The levels can be in their hundreds just on a period so actually the fact that you went to the docs with some post menopause bleeding might actual explain the higher level.

when is your MRI? I am also awaiting mine, I had to have further bloods taken on wed and awaiting my MRI now. 2-4 weeks. 
more waiting…..

keeping everything crossed for us! 

Hi cloudy1986, thanks so much for checking in with me, it means a lot. I've been given an appointment for 23rd December (Merry Christmas!!) I'm clearly on an urgent 2 week wait due to the nature of my cyst, my age and my blood test results. It's very hard not to fear the worst. I'm trying to remind myself that my situation could be completely benign, but due to my terrible habit of googling, I've convinced myself that it's something terrible! I am genuinely sending as many positive thoughts to both of us as I possibly can. X

Yes mine is a beast! I guess women can carry a baby so there is space but it’s now displacing everything so my tummy looks about 9 months along!

yes my sister was told it wasn’t curable but that there were options, she’s just finished 15 weeks of weekly chemo and they are now trying hormone therapy to see if that helps stop it growing, just seems that everyone is touched by it at the moment doesn’t it 

my sister has been really good and trying to convince me it is just a cyst as she had loads of fluid in her abdomen but we just have to wait and see 

my appt next week is just first one with consultant will keep you updated xx

Heh ladies, so I had my 1st meeting with the consultant yesterday - she is concerned by what the CT shows and I am now to be discussed at next weeks MDT - she thinks Operation will be at Coventry which is so disappointing as my sisters experience there was awful! (another story!!), I have an ultrasound booked on Monday so I guess now its just a waiting game - hope you all have a lovely weekend x

Sorry I didn't check in yesterday. I did think about you but was very occupied. My partner's got a new lump so we're worried and I was chasing appointments etc.

I'm sorry you're being offered a hospital you have little faith in. My op went well at my local hospital but the after care wasn't great. Was glad to get home.

I've still got everything crossed for you. Through my partner's and my own journey I know that doctors predictions and concerns aren't infallible. They just give you the best information they can.

I hope you can enjoy your weekend despite all the weight of things to worry about. Distraction is key xx

Sounds like they are taking it seriously which is good. I hope you can plan in some nice distractions amongst all the appointments and no doubt worry! Go really easy on yourself and stay away from Dr Google!

Hope you get your operation date and some answers soon x

oh no I am so sorry to hear that - my sister also has elevated levels this week so its very worrying!! Cancer is so ***! Yes my sister had her operation at Coventry and it was awful, the after care was non existent and 3 weeks after they released her she was admitted as an emergency at Worcester to have her entire wound re stitched (they glued it and it all split open) - that doesnt help my mood lol - yes I will try and enjoy the weekend - hope the news re your partner is positive hun - sending virtual hugs x

ooh me and Dr Google lol - yes worst thing to do but cant help myself!! Thanks for your lovely words - have a sunny weekend xx

I'm keeping everything crossed for you and also for Lyns21. It must be an extremely worrying time for both of you. Cancer and the threat of cancer is such a hideous and evil thing and it's indiscriminate nature just seems so unfair. I'm wishing it as far away as possible for all of us. Try not to reassure yourself with Dr Google. I always think it will make me feel better, but instead if tends to frighten the pants off me! XX

Hope you all had a lovely ,sunny weekend ;-) I have an ultrasound this afternoon so another test ticked off - just waiting for MDT now on Thursday - as you say Google doesnt help xx

Good luck this afternoon, calyxa, I hope it goes smoothly though I know from experience they tend not to report immediately. Things are stressful my end and I'm not being the ideal partner at times but plodding on x

you are the ideal partner - keep the faith - its so difficult I know, I tried to be very positive and make jokes around my sister when she was first diagnosed and now she is doing the same for me! Plodding is often the best way - you have to be strong x  

No real news on the scan front she was happy with the cysts on my liver just been cysts so thats good but she also mentioned fluid in my abdomen which is not so good but strangely that wasnt on the CT so heh ho - just have to wait now I guess x

you are the ideal partner - keep the faith - its so difficult I know, I tried to be very positive and make jokes around my sister when she was first diagnosed and now she is doing the same for me! Plodding is often the best way - you have to be strong x  

No real news on the scan front she was happy with the cysts on my liver just been cysts so thats good but she also mentioned fluid in my abdomen which is not so good but strangely that wasnt on the CT so heh ho - just have to wait now I guess x

I'm sorry there's the additional complication of fluid. That must add additional concern. I guess you have to wait for the consultant to feed back on that. Huge hug, stay strong xx

Thanks Lyns, its weird as CT stated no fluid and ultrasound report does but as you say I have to wait for MDT, I called the secretary and she has promised to call me as soon as she hears anything which is great - and you too hun xx

So Consultant called me, no sign of anything outside of the cyst but she is still calling it suspicious - operation will hopefully be before end May but  need another CT scan to check my clots in the lungs - hoping they have reduced as thats just another complication x

I hope the clots have reduced. Sounds like a proper additional stress. Sounds like they're really fast tracking you if it's the end of May. I wish all these ops and tests were faster even when they're getting there. I just wish it were in and out so there wasn't so much worry.

Gosh that is so fast. I wonder what is making them say suspicious. Maybe it’s size? What about the fluid in your abdomen? What happens with that? My cyst was found in October and I think I will be lucky to have an op within 12 months even though it causes a bit of bother. So I am happy for you getting yours out super quick. Do you have to get the full laparotomy?x

apparently these complex ones can be denses tissue - she also said it maybe benign but I guess they err on the side of caution! I asked about the ascities, she said that can also be common with a cyst or the cyst maybe leaking - i think its only because its so large and probably the cause of my PE as its suppressing the vena cava - she said they had a traget date to get rid which is 4 weeks - I assume its because its a little suss? - my operation will be sternum to bikini line - about 40 cms - eek - wishing you all a wonderful bank holiday weekend x

Wow, mine was below my belly button to my bikini line. I guess they need the room to handle such a big mass. I'm sorry it has to be so big.

I had from my pubis to above my belly button, about 10 inches and 32 staples in February. It's healing really nicely now! It's a bit wiggly as I had a laproscopy in Jan and two previous abdominal surgeries over the years. Wishing you best of luck for the op and I hope you can get some benign answers. They kept telling me mine was cancer, even the day after the surgery they were so sure it was....but it turned out not to be! X

Goodness that’s a big op. Hope your recovery is ok. Get yourself prepped to make life as easy as possible. Ah that makes sense with it leaking, how long after the op will you get answers? You seem so positive, you will smash this with a good outlook on life like you do x 

Glad things are moving nice and quickly for you. It's good to know that if there's any question mark over what they're dealing with, they'll err on the side of caution. I'm not going to lie, a 40cm incision sounds a bit scary, but ultimately, it's got to come out and if that's what it takes, I wouldn't care! As always, I'm keeping everything crossed for you. Hope you can enjoy some rest and relaxation this weekend. X