8cm Complex Ovarian Cyst with CA125 of 51 - Absolutely terrified!!

I posted on here a few days ago after I found out unexpectedly that I had a large complex ovarian cyst. The consultant thinks it could a dermoid cyst but can't determine this for sure and is sending me for an MRI scan. In the meantime, my CA125 has come back raised at 51!!! I'm postmenopausal which just adds even more risk into the mix and I just feel like the odds are stacking up against me. I've had no symptoms and only got checked out because of a tiny amount of postmenopausal bleeding. I'm all over the place.

Parents
  • Hello jembers, I wrote on your first post as I also have an incidental mass very similar. 
    when I had my CA125 test I was told it is very likely for a raised amount even if only a cyst as it can signal other things like pelvic inflammatory. The levels can be in their hundreds just on a period so actually the fact that you went to the docs with some post menopause bleeding might actual explain the higher level.

    when is your MRI? I am also awaiting mine, I had to have further bloods taken on wed and awaiting my MRI now. 2-4 weeks. 
    more waiting…..

    keeping everything crossed for us! 

  • Hi cloudy1986, thanks so much for checking in with me, it means a lot. I've been given an appointment for 23rd December (Merry Christmas!!) I'm clearly on an urgent 2 week wait due to the nature of my cyst, my age and my blood test results. It's very hard not to fear the worst. I'm trying to remind myself that my situation could be completely benign, but due to my terrible habit of googling, I've convinced myself that it's something terrible! I am genuinely sending as many positive thoughts to both of us as I possibly can. X

  • Sorry I didn't check in yesterday. I did think about you but was very occupied. My partner's got a new lump so we're worried and I was chasing appointments etc.

    I'm sorry you're being offered a hospital you have little faith in. My op went well at my local hospital but the after care wasn't great. Was glad to get home.

    I've still got everything crossed for you. Through my partner's and my own journey I know that doctors predictions and concerns aren't infallible. They just give you the best information they can.

    I hope you can enjoy your weekend despite all the weight of things to worry about. Distraction is key xx

  • Sounds like they are taking it seriously which is good. I hope you can plan in some nice distractions amongst all the appointments and no doubt worry! Go really easy on yourself and stay away from Dr Google!

    Hope you get your operation date and some answers soon x

  • oh no I am so sorry to hear that - my sister also has elevated levels this week so its very worrying!! Cancer is so ***! Yes my sister had her operation at Coventry and it was awful, the after care was non existent and 3 weeks after they released her she was admitted as an emergency at Worcester to have her entire wound re stitched (they glued it and it all split open) - that doesnt help my mood lol - yes I will try and enjoy the weekend - hope the news re your partner is positive hun - sending virtual hugs x

  • ooh me and Dr Google lol - yes worst thing to do but cant help myself!! Thanks for your lovely words - have a sunny weekend xx

  • I'm keeping everything crossed for you and also for Lyns21. It must be an extremely worrying time for both of you. Cancer and the threat of cancer is such a hideous and evil thing and it's indiscriminate nature just seems so unfair. I'm wishing it as far away as possible for all of us. Try not to reassure yourself with Dr Google. I always think it will make me feel better, but instead if tends to frighten the pants off me! XX

  • Hope you all had a lovely ,sunny weekend ;-) I have an ultrasound this afternoon so another test ticked off - just waiting for MDT now on Thursday - as you say Google doesnt help xx

  • Good luck this afternoon, calyxa, I hope it goes smoothly though I know from experience they tend not to report immediately. Things are stressful my end and I'm not being the ideal partner at times but plodding on x

  • you are the ideal partner - keep the faith - its so difficult I know, I tried to be very positive and make jokes around my sister when she was first diagnosed and now she is doing the same for me! Plodding is often the best way - you have to be strong x  

    No real news on the scan front she was happy with the cysts on my liver just been cysts so thats good but she also mentioned fluid in my abdomen which is not so good but strangely that wasnt on the CT so heh ho - just have to wait now I guess x

  • So sorry to read you are stressing with your partner finding a new lump. What is the plan?x

  • Only a couple of weeks now until you see the consultant! How you feeling? I had my pre op appointment last Thursday. So I know that I’m in within 6 months as that’s how long it’s valid for. I’ve been today and bought some tablets for the gas pain and silicon gel for scars. I’m also going to buy a pregnancy pillow for support. Just want to be prepared as I can! 

Reply
  • Only a couple of weeks now until you see the consultant! How you feeling? I had my pre op appointment last Thursday. So I know that I’m in within 6 months as that’s how long it’s valid for. I’ve been today and bought some tablets for the gas pain and silicon gel for scars. I’m also going to buy a pregnancy pillow for support. Just want to be prepared as I can! 

Children
  • Did they give you the wash stuff? My pre op they did but I've known lots of people to either not be told about it or not because given it.

  • My pre op she didn’t even seem to know what my op was! It was a height weight and some questions that will go to an anaesthesiologist. So no, please enlighten me! 
    Will you to the oncologist too with him or does he like to go alone? 
    ask your GP for an endoscopy if you are having trouble swallowing. I am sure this stress isn’t helping but don’t let them write it off as that!x

  • There's a lotion called octenisan that you use like shower gel before the op to help kill bugs but I don't know how vital it is as so many aren't advised to use it.

    His mum's going with him. Trying not to feel hurt by it but it's not practical either as I need to know the ins and outs.

    I started having problems before the new lump appeared. It's really weird. I hope it's stress.