So glad I found this post. I’m right at the beginning of all of this. I’m 45, CA135 of 68. Large cyst on right ovary (no measurements yet) been put on 2 week pathway and have my scan and first consultation at hospital on Thursday x my symp are night sweats, slow pee flow, low down pain, heavy painful periods, fatigue. I am so so worried and have been unable to go into work due to anxiety. Im So so scared

So glad I found this post. I’m right at the beginning of all of this. I’m 45, CA135 of 68. Large cyst on right ovary (no measurements yet) been put on 2 week pathway and have my scan and first consultation at hospital on Thursday x my symp are night sweats, slow pee flow, low down pain, heavy painful periods, fatigue. I am so so worried and have been unable to go into work due to anxiety. Im So so scared

Oh lovely, I hope you get the same results as us. Dermoids are more common than cancer but it's good you're being checked quickly. The sooner the better though I know how scary that two week pathway is. I'll keep checking this thread to see how you get on. I had my scare a long time ago now but I check the boards every now and then as my partner has melanoma and I'm happy to hand hold.

It’s normal to be scared but please keep in mind it’s far far more likely to be nothing rather than a something. 
what kind of scan are you awaiting?x 

I believe I am having an ultra sound and internal with a consultation afterwards. I only got my blood results Friday so it’s quick. I just know something’s wrong… I’m trying to stay off my phone but I’m drawn to causing myself more anxiety by googling. I even read that 90% of people with a cyst and raised ca125 are told they have cancer!!! What the hell… I’m sending myself crazy x thanks so much for replying … x

Oh bless you it's such a scary time isn't it. We all know those feelings all too well. It can take a while for a definitive answer as you can probably tell from the stories here but you can and will get through it.

One helpful piece of advice I got was to give myself some allocated worry time each day, then go and distract myself for a bit.

I'll keep everything crossed for you!

Ovarian cysts can cause all of the problems you've listed and still be completely benign so hopefully that's what you're dealing with too.

When my aunt had ovarian cancer her ca-125 was in the 1000s.

Keep us updated x

Might be worth posting those numbers on "ask the nurses" as they might be able to tell you what the numbers really are but even on this board it wouldn't seem to be true and I've been on here for 4 years.

Most people with slightly raised ca125 don't have cancer. I had other cancer markers raised and cysts on both my ovaries which would look like spread and it still wasn't cancer.

The nurses can't tell you anything directly about your situation but they can signpost you to advice and details that are trustworthy. I'd hate for you to think you have a one in ten chance of it not being cancer. I don't think that's come from a reliable source at all.

I had raised over 100 just from a heavy period once.

I think it might be the other way round e.g. 9/10 turn out to be just fine. But they have to take them all seriously just in case x