Hello jembers, I wrote on your first post as I also have an incidental mass very similar. 
when I had my CA125 test I was told it is very likely for a raised amount even if only a cyst as it can signal other things like pelvic inflammatory. The levels can be in their hundreds just on a period so actually the fact that you went to the docs with some post menopause bleeding might actual explain the higher level.

when is your MRI? I am also awaiting mine, I had to have further bloods taken on wed and awaiting my MRI now. 2-4 weeks. 
more waiting…..

keeping everything crossed for us! 

Hi cloudy1986, thanks so much for checking in with me, it means a lot. I've been given an appointment for 23rd December (Merry Christmas!!) I'm clearly on an urgent 2 week wait due to the nature of my cyst, my age and my blood test results. It's very hard not to fear the worst. I'm trying to remind myself that my situation could be completely benign, but due to my terrible habit of googling, I've convinced myself that it's something terrible! I am genuinely sending as many positive thoughts to both of us as I possibly can. X

I called today just to see where I am on the waiting list and she said they had just scheduled me a meeting with the gynae in clinic on 10th march. So not long! No idea when I’ll be in for surgery after then. Waiting game. X 

Thank you that’s really helpful. I guess whatever way they get it out I’ll be grateful to have it gone. Sometimes I get so much pressure pain from it. I can’t wait to not have that! 

That's good to know. I feel like our appointments and results have come at roughly the same time so far, so I'm hopeful now that I might also be seen in March to discuss what needs to be done! X

Hello!

Thought I'd add my update after piggy backing on this thread earlier.

I had a PET scan in December which did show active cells.

On 8th Jan I had a laproscopy to try and remove the mass but that was unsuccessful due to adhesions.

So on 11th February I had major open surgery where they were able to biopsy it and remove a fair chunk.

They removed a mass about the side of a matchbox but I found out yesterday there were no cancerous cells in it at all!!

The surgeons had been so sure it was cancer I expected to be told about further treatment yesterday. But I've been told no cancer!

I'll have repeated scans for 3, 6, 12, 24 months just to make sure nothing sinister grows back.

I hope you are both ok and get your good results soon too x

I'm so glad they didn't discover anything sinister and I'm glad that they're being cautious and giving you regular follow ups. You must be so relieved

That's such great news you must be very relieved ,did they say what happened to the active cells ,I'd be wondering if it was me ,but well done you for getting through all that with a good outcome .

Yeah so I had a huge amount of inflammation where the nodular cyst couldn't break out of all the adhesions I have in my pelvis from 2013 surgery. It's a mess in there apparently. They had 3 Professors check it as they were so surprised but it always came back clear!

So the PET scan showed partial uptake at the time, and they have said that was due to the inflammation. Even bleeding cysts can glow on a PET scan so you can get false positives.

You can't get better than 3 Professors checking for you , they will understand much more than we ever will and its amazing they've given you the all clear ,and also that they will be checking for any signs of anything wrong ,Its so good to hear a good outcome story .

That's interesting. My partner has stage 4 cancer and gets regular PET scans. I didn't know you could get false positives.

Sorry you've had the adhesions and the cyst. Just glad it's come back negative through multiple observations.

That's interesting. My partner has stage 4 cancer and gets regular PET scans. I didn't know you could get false positives.

Sorry you've had the adhesions and the cyst. Just glad it's come back negative through multiple observations.