Hello jembers, I wrote on your first post as I also have an incidental mass very similar. 
when I had my CA125 test I was told it is very likely for a raised amount even if only a cyst as it can signal other things like pelvic inflammatory. The levels can be in their hundreds just on a period so actually the fact that you went to the docs with some post menopause bleeding might actual explain the higher level.

when is your MRI? I am also awaiting mine, I had to have further bloods taken on wed and awaiting my MRI now. 2-4 weeks. 
more waiting…..

keeping everything crossed for us! 

Hi cloudy1986, thanks so much for checking in with me, it means a lot. I've been given an appointment for 23rd December (Merry Christmas!!) I'm clearly on an urgent 2 week wait due to the nature of my cyst, my age and my blood test results. It's very hard not to fear the worst. I'm trying to remind myself that my situation could be completely benign, but due to my terrible habit of googling, I've convinced myself that it's something terrible! I am genuinely sending as many positive thoughts to both of us as I possibly can. X

These pesky ovarian cysts are a nightmare aren't they! Fingers crossed for all of us that they'll just be something that needs taking out and that will be it. I'm still waiting for results and this whole situation has consumed every minute of every day since I found out about it. I've had no symptoms, although now I know about it, I keep getting little aches and twinges that are probably psychological. My blood test was elevated which makes me even more worried and I'm constantly trying to tell myself that it doesn't necessarily mean anything sinister, but it's so hard not to think the worst. I imagine that given your circumstances, your concern is high. It's good to hear though that these things are taking seriously and the NHS will sweep in a get things organised in a timely manner to keep people safe. X

Thank you for answering all my endless questions, I’m a first timer here and so interested in people’s stories. I am so glad for you that everything is moving so quickly. It seems you will have answers pretty soon. Is it minor surgery you will need to get it out? Outpatient? 
hope it goes smoothly, keep in touch when you know more and good luck for your scans x 

I had no idea PET scans had so much radiation. I am sorry to read about your partner, I didn’t realise as we had only previously discussed your own story. I’m glad you still visit this site, you are a wealth of knowledge here. What cancer was he diagnosed with? Thank you for all your answers, I have really appreciated the time you take to reply x 

Hello Jembers, still waiting results over here too. Doesn’t it feel like forever ago all this started? And it’s only a few weeks. Were you given any idea when you are likely to hear anything? The gynae secretary told me I was welcome to call on Friday 3rd and see if my scans had been looked at yet. She told me there were 3 pathways I could be allocated to:

1 - cancer (app within 4 weeks)

2 - needs further investigation, possible cancer (app within 3 months)

3 - urgent but benign (app within 12 months) 

4 - routine (app within 18 months) 

I won’t know until they have reviewed but I can’t believe how long it will be either way! 

I'm going in for key hole outpatient surgery but with a possibility that it could turn in to open / inpatient surgery if the cyst is in an awkward place. Because I had a radical hysterectomy in 2013 it might not be straightforward as I kept my ovaries but everything else will have moved around and the ovaries tend to get 'stuck' over the years after the hysterectomy.

So, I'm hoping the planned minor op will go ahead but preparing myself it might end up being a longer operation with an open incision.

Lots of unknowns and variables and I won't know until I wake up!

Something like 9/10 complex cysts are benign so I'm trying to stay positive and give myself a 'worry hour' every day to panic in. Then I get on with stuff

It is the hardest period dealing with the uncertainties. A rollercoaster of emotions and appointments and reactions to deal with. We will all feel so much better once we have a plan and know for certain that I can assure you of x

With the exception of the 1st time frame, all the others are ridiculous!!! I cannot believe possible cancer could take 3 months. I really hope that's not true. I'm aware that you're in Scotland, so things might be slightly different to England, but even so... I've got it in my head that I'll hear something this week. I want to know, but I feel sick just thinking about it. How are you feeling?

I'm wishing you all the very best. Glad you know a bit more about what's happening, but yes, the unknown bits are horrendous. X

A worry hour is such a great idea. Honestly I am going to steal this and implement it into my life. I don’t know why I haven’t thought of it, instead of just worrying all day, just set myself 1 hour to google and worry and panic and then it will all need to wait until the next day. 
Hopefully if you work they are going to be ok with you being off for an unknown period of time, I think the open surgery recovery is longer. 
isn’t it funny how we are all hopeful for a wee hairy gremlin dermoid cyst, so hoping all of us on here are in those 9/10 good odds! X 

My mum's in Scotland and her endometrial cancer took months for her hysterectomy then there's been no decent follow up. They need targets like in England but I've found that there's more medically trained professionals here as I'm an hour away from London so I think it makes things run smoother when you can attract the personnel.

"wee hairy gremlin," makes it sound like they could sprout legs and run away. And I had two of them!

I miss Scotland. Down here new people either talk to me about whiskey or deep fried mars bars. I'm not partial to the former and the latter I've never tasted  

"wee hairy gremlin," makes it sound like they could sprout legs and run away. And I had two of them!

I miss Scotland. Down here new people either talk to me about whiskey or deep fried mars bars. I'm not partial to the former and the latter I've never tasted  

Agreed that’s the NHS care in Scotland seems a little more lacking than in the big cities down south. I feel jealous we don’t have a login to view our NHS letters etc. I have looked into going private, I actually made an appointment in a panic but then received a phone call to go for an MRI on the NhS a few days before. I don’t have the funds to spare, however if someone tells me I’ve to wait months then I’ll find them! 
my gremlin analogy comes from stupidly googling pictures of a dermoid, what horrid things they are. 
I also hate whiskey, but I do love a fried mars bar! 

If the timescale seems to stretch out before you kick up a fuss. My mum was too passive believing in the power of prayer and the wisdom of doctors. She's okay though but it was only 2.5 years ago so I nag her all the time to keep an eye on things and chase the doctor.

There's a different culture here with the NHS. The docs are more cautious and the service users are more plaintive. Well, I've been down here a long time so I don't really know if the culture has changed much in Scotland but the stories friends and family tell me make me think it's not changed enough. Still very medically paternal.

Hi there, just wanted to let you know that my MRI results confirmed a dermoid cyst with no particularly concerning features, but will need to be removed. Apparently it does have "significant restricted diffusion" which I've read is a feature sometimes associated with possible malignancy, but is also a finding in dermoid and other ovarian cysts. Most reassuringly, I have been stepped down from the cancer pathway, so fingers crossed everything will be fine. Thank you so much for the time you have taken since I first posted on here to share your own experience, knowledge and advice. When I was having massive panics, it genuinely helped me keep things in perspective and reminded me not to always assume the worst case scenario. X

I'm so glad they think it's not cancer and that it helped to read my experience. I remember being consumed by thoughts of the worst. The emotional turmoil was definitely worse than the operation. I still had my doubts after even the biopsy largely because so many in my family had recently had cancer its presence weighed heavily on my mind. Keep us posted with how the operation goes. Wishing you the best of health x