Hi Beaumont44, 

I just wanted to say we are thinking of you during this stressful time. I guess the MDT meeting was today and I hope that you get an appointment soon to find out exactly what is going on. It's completely normal to be scared when dealing with all this uncertainty at the moment and after having been through all these tests. 

Let us know what you find out - you are not alone though and many members of our community have been through this before and will hopefully come and say hello soon and share their stories with you. While you are waiting, as there is nothing harder than waiting for a diagnosis, I thought I would share with you our helpful tips to help you cope while waiting for news. 

Best wishes, 

Lucie, Cancer Chat Moderator

Thankyou for your response , nothing today but hoping a phonecall in the morning x

I had a follow up with both my consultant’s registrar who said my op was good. They removed all the tumour and also removed all lymph nodes near the bowel and no chancer detected in any of them so the chemo had obviously done its job. After talking to my oncologist we decided no further chemo was needed at this point. It’s a kind of limbo now waiting for first yearly checkup which I find quite scary. I’m just concentrating on trying to get my energy levels back up and I get frustrated. The best advice I was given is be kind to yourself and just do what you can. Just been out for meal with my husband so it can’t be bad. X

Did you have a good Christmas? My daughter had chemo today she is feeling pretty rough.  Had a bit of a melt down she was feeling very anxious xx

Hi it was a nice day yeah thankyou , had call from hospital today to go in on the 2nd for bloods and prep stuff before I go in on 7th , I had letters today too about the op , im back to square one I think with the anxiety I honestly feel so so scared for stoma bag and people are saying it will be fine ! I honestly don't feel that way at all , aww bless her hope she's feeling a bit better today , im scared now for surgery too ! Hope you're ok and had a good Christmas xx

Lovely Christmas.  I know my daughter is getting anxious about her surgery we just hope the tumour has shrunk enough x

When does she finish chemo ? Xx

Her last one is the 10 January she has scans booked for the 20th January.  Then I think maybe 2nd February appointments with her oncologist and surgeon xx

It's the not knowing again for me basically if the cancer is low down in rectum il have a permanent stoma ..if its higher they might be able to save my sphincter then I will have a temporary one but I won't know until I wake up! Xx

I am in a similar situation,I have a sigmoid tumour, found out at begining of December and have op for surgery booked on 8th Jan. I thought I was coping ok with it all till a few days ago when the enormity of it hit.  Not sure what I am scared the most about,the cancer or the thought of having a stoma for life. I will not know about the Stoma till I wake up from operation so feel out of control and not able to plan for after the op. Saw the stoma nurse yesterday so I could be armed with more information she was great and explained everything but still struggling to process the thought of having one. Am starting to get very nervous about the operation and feel like I am counting the days down to me never being the same person again as I am.now, does that sounds weird?!

I keep trying to remind myself at least I will be alive and hopefully cancer free afterwards.

Hope all goes well with everyones Chemo and operations.

Hi there , no does not sound weird at all I feel like in living my last days until life changes ! I also am scared as like you say you can't plan as no idea until I wake up ! I'm praying it's reversible all I can do at the minute I'm so scared , nurse was also lovely gave me a pack with stoma bag etc in to have a look at and get the feel for it..its still in the car ! I feel I've dealt with chemo and I will deal with surgery. But seems no end to it , obvs hoping to be cancer free , hope all goes well for you too....pls let me know and I will you xx

Hi there , no it doesn't sound weird at all ,I feel like I'm living my last few days which is a bit silly ! But it'd how I feel ! Iv coped with diagnosis and chemo but this could potentially be for life , I just don't know how I will cope , awful to think I won't know either until I wake up , have to try focus on being cancer free , pls let me know how your surgery goes and I will you ..lots of love xx

Hi there , no it doesn't sound weird at all ,I feel like I'm living my last few days which is a bit silly ! But it'd how I feel ! Iv coped with diagnosis and chemo but this could potentially be for life , I just don't know how I will cope , awful to think I won't know either until I wake up , have to try focus on being cancer free , pls let me know how your surgery goes and I will you ..lots of love xx

Thinking of you lots of love xx

Thankyou , im nervous for the outcome but also want it over , I will let you know , hope you and your daughter are OK.. lots of love xx

Yes we are ok.  I completely understand you are nervous.  My daughter and I are feeling anxious about the ne t stage.  It will be all fine I am sure of it.   Lots of love xx

Had glucose sachets to take last 2 days and a laxative and antibiotics, also nurse was coming today to give me injection to thin blood at 8 and 6 ..but because of the weather they couldn't get here ! I had to do them myself ! I managed it lol I've to take another glucose sachet in morning at 5 then I'm ready! Not long til your daughter scans is it 20th? Sure all will be good xx

Yes it is the 20th.  So much to do to prepare for the surgery x

I hope you're daughter gets to know what she's facing after scans , I don't know and it's the worst again ! Not knowing if stoma will be permanent or not ..praying tonight it's not xx

Yes I think that’s what I am concerned about she’s so young as well.  She seems more positive about it than me.  She has been amazing through all this xx

That's really good that she's positive , well I better go to bed up at 5 for more glucose! Lots of love to you both ️ xx

Good night get some rest.  All the best for tomorrow xx

I hope all is going well for you today.

I'm waiting to hear if I'll need chemo/radio. It's all very daunting and scary.