Coping with the wait!

Hi, just wondering how anyone else has been able to cope with waiting for test results.  Have been told I have cancer but waiting for biopsy results to determine whether it's lymphoma and if so what type.  The waiting is so frustrating and upsetting and I feel like I'm on an emotional rollercoaster.  I try to keep myself busy and to avoid researching - although that's quite difficult at times.  Sometimes it's hard to stop my mind wandering to worse case scenario.  I'm sure that there are lots of you in the same position and wondered if you chould share how you are dealing withi it, or just confirm that what I'm going through is perfectly normal :)

  • Hi sorry to hear that you too are in the "waiting room" which can be quite frustrating at times.  I personally think the waiting is the most difficult time to deal with as you can't actually be proactive or plan to do a great deal to move things forward and whilst I realise that biopsies don't give results overnight it can seem like an endless wait.  Stay strong focus on best case scenarios and try to find ways to distract your mind.  I do a lot of reading and crafts xx

    Fingers crossed and prayers for the best possible outcomes for all.

    Keep us posted of your progress x 

  • Oh my x seems like a letter of mixed news x good news no cancer though which must be a relief.  As Sharza suggested perhaps submitting a question to the nurses on here might give you a bit more clar y.  More waiting now until your next appointment but at least you have a date to work towards and can count off the number of sleeps  

    Take care and stay strong and hope your son isn't finding the waiting too distressing too x 

  • Hi x appointment on Friday was to tell me that the histology results are still not back yet but that I need to go for a PET scan which will hopefully be this week.  I've also been prescribed steroids which should reduce the swelling and inflammation but can't take them until scan complete.  Hopefully see consultant again next week pending biopsy results being in to discuss treatment plan.

    Trying to stay strong and positive but is getting harder the longer the wait goes on if I'm honest.

    Sending love and positivity to all x

  • Thank you so much, I will be sure to keep you all posted. 

  • It’s good that they are keeping you well informed though, I have my appointment with the surgeon this Thursday so hopefully he will give me the results of my CT/MRI and biopsies and what treatment plan is ahead, think surgery is obviously being considered initially but don’t want to preempt Thursday discussion. Like you a bit longer to wait, then it’s when will it all actually start? 

    Trying to keep positive thoughts, stay strong everyone, sending hope and love xx

  • Another wait but it's good that they're doing the PET scan in parallel with the biopsy analysis rather than one after the other.

    It's times like this that you know who your friends are.

    Wishing you well x

  • Hi ladies. I just had a call. It was an insufficient biopsy, so will have to do it under general..within the 2 week rule. The trans vag. scan looked reassuring apparently. So fingers crossed xx

    Good luck to you all for your results xx

  • Hope you get the best case results on Thursday.  Will be thinking of you x 

  • I agree x it's also interesting to see how different people react when you make them aware.  I'm surrounded by a great network of friends and family but sometimes that can be difficult as I feel I should stay strong for them when all I want to do is have a tantrum x

    Take care and keep strong x  

  • Again mixed bundle of news x great that one aspect is reassuring but not that you have to undergo another biopsy x fingers crossed you get this done quickly and the waiting time is reduced.

    Take care x