Rare Tongue Cancer

Hi just got the news, I have a very rare tumour at the very back of my tongue that's not operable due to its location. I'm waiting on MRI and PET Scan appointments. Radiotherapy and maybe chemotherapy has been mentioned. Has anyone this rare tongue cancer......

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  • Hi Mary. Quite early in in  diagnosis I took the decision that this wasn't going to best me. The mask was my defender I gave her a name snd every session told her I named her yep I did lol. Told her it was going to hurt her more than me and she was going to save my life which it did. I was fine I composed myself walked in with head head high and concentrated in my breathing and took my head in a bike ride or a walk I took my own music in. Before it started at home I used to our in bed visualise my walk set the timer for 12 mins and I never got to end of walk or bike ride. 12  mins most days nsybe 15 if scsn was being done. You can do it I did it. 
    hazel 

  • Thanks so much for the encouragement Hazel.

     

  • No problem Mary snd Peter will help both if you snd hopefully you can help each other. The waiting is truly the worst part once treatment plan is in place everything comes together. Once biopsies and results are in then the planking gurus step in snd do their work as all our treatment plans are tailored to each individual. 
    from the calm bay of Biscay proofing life goes on. 
    Hazel xx