Rare Tongue Cancer

Hi just got the news, I have a very rare tumour at the very back of my tongue that's not operable due to its location. I'm waiting on MRI and PET Scan appointments. Radiotherapy and maybe chemotherapy has been mentioned. Has anyone this rare tongue cancer......

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  • Hi Mary sorry you've found yourself on here. I had a rare tonsillar cancer h p v positive (16) with several affected lymph nodes. I wasn't operated in as one of lymph nodes was too close to spinal cord. I had 35 radiotherapy snd 2 chemo sessions. I am now 3 years post radiotherapy and living my life. I was one if the 3% female with what is typically a male cancer. Don't stress radiotherapy snd chemo is hard but I was 61 and I did if. I have  a blog  which shows what I did. www.radioactiveraz.Wordpress.com

    Keep off dr google please that will scare you more 

  • Hi, thank you for your reply. I have taken a look at your blog.  It was a very interesting read. Thank you for sharing.  The Radiotherapy looked very severe, well done to you for getting through it.  Is there any moisturizer that I can be putting on to help to build up my skin?

     

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