Hello Mary5610 and a warm welcome to our forum! 

I am sorry to hear that this rare tumour at the very back of your tongue is not operable due to its location. I hope that the MRI and PET scans will shed some light on what treatment options will be available to you. 

Our information on tongue cancer will I hope be helpful to you and answer questions you may have on tongue cancer and if there is anything you'd like to discuss further with one of our nurses, feel free to give them a call on this free number 0808 800 4040 - their line is open Monday to Friday from 9am to 5pm. 

You've come to the right place to meet others who've been affected by tongue cancer and there are countless threads on the forum on this subject. If you just type the keywords 'tongue cancer' in our search forum function which is located on the blue banner at the top, you will be able to see past threads from members who have had a similar diagnosis and feel free to respond to any you feel you would like to connect with. For example, [@Purple77]‍ posted on her thread a couple of months ago that her mother in law had been diagnosed with tongue cancer so it might be a good person for you to talk to.

I hope you will hear from others on this forum who have had a similar diagnosis and that they will come and share their story with you. 

Best wishes, 

Lucie, Cancer Chat Moderator

Hello Mary5610 and a warm welcome to our forum! 

I am sorry to hear that this rare tumour at the very back of your tongue is not operable due to its location. I hope that the MRI and PET scans will shed some light on what treatment options will be available to you. 

Our information on tongue cancer will I hope be helpful to you and answer questions you may have on tongue cancer and if there is anything you'd like to discuss further with one of our nurses, feel free to give them a call on this free number 0808 800 4040 - their line is open Monday to Friday from 9am to 5pm. 

You've come to the right place to meet others who've been affected by tongue cancer and there are countless threads on the forum on this subject. If you just type the keywords 'tongue cancer' in our search forum function which is located on the blue banner at the top, you will be able to see past threads from members who have had a similar diagnosis and feel free to respond to any you feel you would like to connect with. For example, [@Purple77]‍ posted on her thread a couple of months ago that her mother in law had been diagnosed with tongue cancer so it might be a good person for you to talk to.

I hope you will hear from others on this forum who have had a similar diagnosis and that they will come and share their story with you. 

Best wishes, 

Lucie, Cancer Chat Moderator