Is it usual for Macmillan nurse to relay MDT decisions?

Hi this is my first post. I've recently been diagnosed with cancer. I've had a ct scan to check if it's spread. The MDT meeting was today and they discussed what my options were.  I'll be told the decisions made in Monday. 
my concern is that I'm only going to be meeting with the Macmillan nurse and dietician. Why won't any consultants or surgeons be there? I feel like it must mean there's no hope and nothing to be done so just put her with the Macmillan nurse. I'm horrified that a large team has made decisions on whether they'll treat me or not yet have never met me. I have the weekend to go now and I feel in despair. 
is this usual fir a nurse to relay what was discussed? The nurse said they ' like to get know me' why? I don't want to meet them. I want to hear the drs reasoning. I'm a nurse practitioner myself so mean no disrespect whatsoever. I'm just horrified that these huge discussions have taken place without me and the nurse will present the outcome. Is this usual for cancer care? I've never come across it in other fields. 

Parents
  • Dear member 

    Yes I had a specialist nurse phone me after the MDT I have met before 

    Yes she was limited in what she could tell and it wasnt good news

    What i advise is to phone your consultant secretary and kindly ask if your mdt outcome could be discussed withyou with a doctor 

    Usually you dont have to explain why the secretary would sort it 

    You are dealing with a lot already, you dont need extra stress , you can have control over who you waht to talk to

    I didnt know this when i started but now having been through so many treatments,  i have some say about what i dont want 

    I know its annoying and frustrating but u can still have control 

    You are a nurse practioner , you know patients come first and they have to work around you

    Let  us know how you get on 

    Best wishes 

    Karina 

     

     

  • Hi sorry to jump on this post..

    Recently i had treatment done

    1st biopsy a cell was cancerous

    2nd biopsy are in put was ment to be in a mdt meeting so ive rang for update but apparently I was no longer in a mdt today due to not a full report as there waiting on something to go on have you had anything like this or know why please.

    I'm in next week's mdt meeting now

Reply
  • Hi sorry to jump on this post..

    Recently i had treatment done

    1st biopsy a cell was cancerous

    2nd biopsy are in put was ment to be in a mdt meeting so ive rang for update but apparently I was no longer in a mdt today due to not a full report as there waiting on something to go on have you had anything like this or know why please.

    I'm in next week's mdt meeting now

Children
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