Is it usual for Macmillan nurse to relay MDT decisions?

Hi this is my first post. I've recently been diagnosed with cancer. I've had a ct scan to check if it's spread. The MDT meeting was today and they discussed what my options were.  I'll be told the decisions made in Monday. 
my concern is that I'm only going to be meeting with the Macmillan nurse and dietician. Why won't any consultants or surgeons be there? I feel like it must mean there's no hope and nothing to be done so just put her with the Macmillan nurse. I'm horrified that a large team has made decisions on whether they'll treat me or not yet have never met me. I have the weekend to go now and I feel in despair. 
is this usual fir a nurse to relay what was discussed? The nurse said they ' like to get know me' why? I don't want to meet them. I want to hear the drs reasoning. I'm a nurse practitioner myself so mean no disrespect whatsoever. I'm just horrified that these huge discussions have taken place without me and the nurse will present the outcome. Is this usual for cancer care? I've never come across it in other fields. 

Parents
  • Think you need to take a step back - waiting for results is a horrible place to be. Would you rather have a plan of action in place when the team meets your  ?? .

     

    Multi agency meetings happen all the time , not just for cancer services but for mental health/maternity and childrens services ( to name a few). Having clients at these meeting would be impossible, the arranging and time factors would be problematic. Also the meetings would only be able to discuss one /two clients, opposed to a list full 

     

    You nurse specialst is your direct access to the medical team - so use her /him.

     

    It may be rather than delaying seeing you the nurse specialist, is able to discuss with you sooner than the doctors the treatment plan discussed at the meeting,as well as getting to know where you are emotionally and, get some help /support in place 

Reply
  • Think you need to take a step back - waiting for results is a horrible place to be. Would you rather have a plan of action in place when the team meets your  ?? .

     

    Multi agency meetings happen all the time , not just for cancer services but for mental health/maternity and childrens services ( to name a few). Having clients at these meeting would be impossible, the arranging and time factors would be problematic. Also the meetings would only be able to discuss one /two clients, opposed to a list full 

     

    You nurse specialst is your direct access to the medical team - so use her /him.

     

    It may be rather than delaying seeing you the nurse specialist, is able to discuss with you sooner than the doctors the treatment plan discussed at the meeting,as well as getting to know where you are emotionally and, get some help /support in place 

Children
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