Think you need to take a step back - waiting for results is a horrible place to be. Would you rather have a plan of action in place when the team meets your  ?? .

Multi agency meetings happen all the time , not just for cancer services but for mental health/maternity and childrens services ( to name a few). Having clients at these meeting would be impossible, the arranging and time factors would be problematic. Also the meetings would only be able to discuss one /two clients, opposed to a list full 

You nurse specialst is your direct access to the medical team - so use her /him.

It may be rather than delaying seeing you the nurse specialist, is able to discuss with you sooner than the doctors the treatment plan discussed at the meeting,as well as getting to know where you are emotionally and, get some help /support in place 

Hi Barneysmum

I can only tell you my experience, and that was that all major updates, discussions re treatment and decisions were done with either surgeon or oncologist & a breast cancer nurse.

I would double check with your BCN (assuming you have one) that the meeting with MacM nurse is as you think it is, could it just be a coincidental timing?  I would personally be very surprised if a MacM nurse would relay options as you may well have questions that they may well (as they are neither surgeon or oncologist) be unable to answer.

Best to put your mind at rest and get on the blower to ascertain exactly what the situation is, and if its not to your liking then make it known.

Good luck

Sam

Hi Sam. Thanks that's a very useful response. I've been a senior nurse practitioner for 40 years and I've never relayed consultants decisions or MDT discussions to patients. I wouldn't dare,  because I don't know enough to answer queries about decisions made by surgeons or oncologists. I did say I wasn't happy but it's still going ahead. It doesn't help that I feel the Macmillan nurses are my gateway to the drs. They said they are my advocate but I didn't ask for one. I want to speak for myself at this stage. It's very hard to challenge something when you're so low and know you're utterly dependent on them. Thankyou for your kind response. 

by the way: to the last poster. I do know how MDT' s work. However this is not usual practice. 

You will get to speak to the doctors - but at this time and this ongoing health crisis  

use the services on offer to address some your concerns 

The services work as a team, although they do vary across the county

Dear member 

Yes I had a specialist nurse phone me after the MDT I have met before 

Yes she was limited in what she could tell and it wasnt good news

What i advise is to phone your consultant secretary and kindly ask if your mdt outcome could be discussed withyou with a doctor 

Usually you dont have to explain why the secretary would sort it 

You are dealing with a lot already, you dont need extra stress , you can have control over who you waht to talk to

I didnt know this when i started but now having been through so many treatments,  i have some say about what i dont want 

I know its annoying and frustrating but u can still have control 

You are a nurse practioner , you know patients come first and they have to work around you

Let  us know how you get on 

Best wishes 

Karina 

Hi sorry to jump on this post..

Recently i had treatment done

1st biopsy a cell was cancerous

2nd biopsy are in put was ment to be in a mdt meeting so ive rang for update but apparently I was no longer in a mdt today due to not a full report as there waiting on something to go on have you had anything like this or know why please.

I'm in next week's mdt meeting now