Hello from a new member of the family

Today I joined the army of people sitting around different waiting areas, carrying my belongings and my "gown" as we went through the various tests to find out if we had breast cancer. Some were, like me, totally new to the routine, others were at various stages in the journey and one lady was given the great news that she was still clear of her cancer five years since her treatment ended. 

I already suspected that my symptoms of strange lump, pain and puckering were caused by the big C, so I wasn't surprised when the lovely consultant showed me the first ultra sound scan with its big black area where there should have been breast tissue, saying it was pretty definitely cancer, and proceeded to tell me what would happen next. 

What did happen over the next two hours was quite unpleasant and painful and I now have a 12 day wait to find out exactly what we are looking at regarding type of cancer and treatment. Strangely enough I have no feelings of fear for the future, although twenty years ago I had a scare that saw me fearful and tearful, now I'm an old dear I'm just cheesed off that I will have quite a lot more unpleasantness to face. I'm one of those boring people who don't often get ill, so when I do I'm the patient from hell, or so my daughter tells me. I admit to being grumpy if I'm ill for more than two days. 

I have read a lot of the posts, here, during my wait to go for the tests, feeling like an outsider looking in, but now I'm in, too!   I suspect future posts from me will be less upbeat, but I would like to record my experiences here, and to share others' experiences, too.

Parents
  • Hi

    i had a similar visit 5 days ago, except I've never been through this before, I'm still waiting on CT as my lymph nodes were also affected 

    I don't know how I'm meant to feel, I just feel like I need all the results now and the wait is excruciating 

    I have a 3 week wait for CT due to coronavirus although I am on an emergency cancellation list

    i would welcome any advice at all on how best to deal with this, I'm 43 and have 3 young children 

    xxx

  • Hi Amil,

    I'm sorry to hear you have joined the club, or the family, as I thought of it when I was at the beginning of the cancer journey, but you've found the right place to talk about things.  

    You are at the worst time of your new reality, and it's a scary time when you have young children. The waiting for results is the hardest part of the whole journey. As Caroline said keep busy, talk to people you feel are not going to be too freaked out by your news and try to stay positive, it really is just a blip, a few months of intense emotions and so many flipping appointments.  You don't know until you are affected just how many people have had breast cancer, some of them many many years ago. I was surprised to find several of my neighbours were all living perfectly normal lives after breast cancer and I couldn't believe how many people said, "My friend/ sister/mother had it about twenty years ago". In fact I began to think there was nothing special about having it at all! Not that I expect you to feel like that at this stage.

    If you have read many of the posts from Caroline, Sam and myself you will have a good idea of the kind of things to expect in the future, all of which we have survived with our sense of humour intact, if not our bust lines. 

    The three of us who have kept this thread going, and the people who have just popped in from time to time, have all had different experiences, different treatments etc but the three of us are feeling that we are near the end of the journey as far as our initial treatments are concerned. What the future holds, we don't know, but we are each in a position to know we will cope, as we have coped with our lives over the last few months. 

    One piece of advice I would offer, is to ask if you are confused or worried or even if you disagree with anything you are being told.  Don't feel you have to accept what you are told until you fully understand it. It is your body and you are the person being affected by all this.  The doctors and nurses may seem to be a bit offhand sometimes, it's just because they have seen it so often and they know that you will probably be absolutely fine (if you do as they say) but they are not God and it is your right to question.  

    Good luck with what's to come, it won't be half as bad as you imagine at this stage. Accept any and all help offered, keep your sense of humour, enjoy your kids. And if you need a rant to say things you don't want to say to your loved ones, this is the place to come, we all understand where you are coming from!

    Christine xxx

     

Reply
  • Hi Amil,

    I'm sorry to hear you have joined the club, or the family, as I thought of it when I was at the beginning of the cancer journey, but you've found the right place to talk about things.  

    You are at the worst time of your new reality, and it's a scary time when you have young children. The waiting for results is the hardest part of the whole journey. As Caroline said keep busy, talk to people you feel are not going to be too freaked out by your news and try to stay positive, it really is just a blip, a few months of intense emotions and so many flipping appointments.  You don't know until you are affected just how many people have had breast cancer, some of them many many years ago. I was surprised to find several of my neighbours were all living perfectly normal lives after breast cancer and I couldn't believe how many people said, "My friend/ sister/mother had it about twenty years ago". In fact I began to think there was nothing special about having it at all! Not that I expect you to feel like that at this stage.

    If you have read many of the posts from Caroline, Sam and myself you will have a good idea of the kind of things to expect in the future, all of which we have survived with our sense of humour intact, if not our bust lines. 

    The three of us who have kept this thread going, and the people who have just popped in from time to time, have all had different experiences, different treatments etc but the three of us are feeling that we are near the end of the journey as far as our initial treatments are concerned. What the future holds, we don't know, but we are each in a position to know we will cope, as we have coped with our lives over the last few months. 

    One piece of advice I would offer, is to ask if you are confused or worried or even if you disagree with anything you are being told.  Don't feel you have to accept what you are told until you fully understand it. It is your body and you are the person being affected by all this.  The doctors and nurses may seem to be a bit offhand sometimes, it's just because they have seen it so often and they know that you will probably be absolutely fine (if you do as they say) but they are not God and it is your right to question.  

    Good luck with what's to come, it won't be half as bad as you imagine at this stage. Accept any and all help offered, keep your sense of humour, enjoy your kids. And if you need a rant to say things you don't want to say to your loved ones, this is the place to come, we all understand where you are coming from!

    Christine xxx

     

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