Recently diagnosed with breast cancer

Hi everyone , I’m 44 recently diagnosed with Breast cancer DCIS and also hormone positive . Its in my lymph nodes aswell . Had CT , Bone Scan and MRI . I’m back on Tuesday to find out results . I’m freaked out having pain in the middle of my back and kept thinking it’s spread . Everyone says it’s stress . I’m fairly healthy never smoked . Just wondering has anyone any advice please . Xx

  • hi Big Jean

    Thats the best possible news, I’m so pleased it hasn’t spread. I know what that sense of relief feels like. 

    i had a meeting with the oncologist today; when they did my scans they picked up I had an inflamed appendix, so have referred me to have it looked at before I start chemo.  So not a great start as I was mentally geared up to start chemo in the next couple of weeks, but it’s the right thing to do. So another two weeks wait.

    Sounds like we are on similar treatment paths, it would be good to keep connected throughout our journeys.

     

    take care 

    WL

     

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    Hi BigJean,

    This is great news. I'm not at all surprized that it drove both you and your hubby to tears.

    You're now ready to move on to treatment and, will feel better once you start that and, feel that you are beginning to move forward.

    Don't forget to keep in touch as you move along your cancer journey.

    We are always here for you.

    Kind regards,

    Jolamine xx

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    Hi Woolylamb,

    I am so sorry to hear about your inflamed appendix. It is always disappointing when your chemo is delayed, but it is certainly the right thing to investigate this problem first.

    I hope that you can find answers soon and move back to your chemo.

    Kind regards,


    Jolamine xx

  • Hi WL,

    sorry to hear about your appendix but it will be better to get it sorted before you start chemo .

    It does sound like we are on very similar paths . 

    I just want to get started as now I know what’s ahead of me . 

    Keep in touch and let me know how you get on . 

    Take care

    xxxxxx

  • Hi Jolamine, 

    it was a huge relief to get that news as we were expecting the worst . 

    I’m so grateful for everyone’s kind words and advice .

    i just want to get started now as I’m ready to fight and face what’s ahead of me . 

     

    Will keep in touch . 

    Talk soon xxxxx

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    Hi BigJean,

    I am so glad that things weren't as bad as you suspected and, can understand your need to get on with treatment now as soon as possible.

    I sincerely hope that it all goes well.

    Kind regards,

    Jolamine xx

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    Hi everyone,

    i forgot to mention that I have been told I have to go on Herceptin every 3 weeks . Didnt really ask anything about it was just given a leaflet about it ! Does anyone have any advice on this ??

    thank you all so much . Xx

  • Just read this, that's great news Jean, really pleased.

    LJx

  • Hi there,

    I'm on Herceptin and Perjeta every 3 weeks for 10 years.  At the moment it's given with my chemo but once chemo stops I'll still be going in every 3 weeks.

    I am allergic to it so am given an IV antihistamine too but hopefully you won't be allergic anyway.  Nothing really to advise you, I get no side effects from the H or P, my mum was on Herceptin too and she never had any side effects from it.

    They'll monitor your heart closely as it can cause damage to your heart.  One way to help protect against that or minimise it is to follow the usual rules for improving your 'ejection fraction', you can Google these.  They include obvious things like cardio exercise and monitoring your sodium intake (and, therefore, fluid retention).  But obviously speak to your oncologist before starting or changing anything.

    LJx

  • Hi thanks for getting back to me . It was the nurse that told me I would be going on it . She just gave me a leaflet and said I would be on it every 3 weeks with chemo . 

    Bit worried now as there are heart problems on my Dads side of the family . 

    I’ll say this to the oncologist when I see him on Thursday. 

    Thanks for your advice 

    xxx