Recently diagnosed with breast cancer

Hi everyone , I’m 44 recently diagnosed with Breast cancer DCIS and also hormone positive . Its in my lymph nodes aswell . Had CT , Bone Scan and MRI . I’m back on Tuesday to find out results . I’m freaked out having pain in the middle of my back and kept thinking it’s spread . Everyone says it’s stress . I’m fairly healthy never smoked . Just wondering has anyone any advice please . Xx

Parents
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    Hi BigJean,

    A very warm welcome to our forum, although I'm sorry for the reason you've joined. I hope that your results on Tuesday can help to put your mind at rest. Even if the news is not so good, it helps to know what the next moves are and puts a more positive slant on things.

    I suspect that the pain in your back is consequential to your diagnosis. We always seem to think the worst and develop all sorts of additional symptoms. In most cases this seems to be due to stress.

    I have lost my mum to breast cancer and, have had 2 bouts myself within the past 9 years. Waiting for results is always one of the most stressful times of a cancer journey. Try to keep yourself distracted by other pursuits and do your best to stay away from Google. The fact that you are healthy and have never smoked, should stand you in good stead with any treatment needed.

    Do please keep in touch and let us know how you get on on Tuesday. We are always here for you.

    Kind regards,

    Jolamine xx

     

  • Hi Jolamine ,

    thank you for your kind words . I’m so sorry you lost your mum and you going through it twice . I am not going to let it get me down just back from a big walk with my family and I feel great . That’s the weird thing I don’t feel sick at all . 

    I’ll let you know how I get on on Tuesday but I am ready to fight 

    talk soon xx

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    Hi BigJean,

    This is just the attitude you need. Keep it up.  Many of us don't feel sick or feel any pain when we first attend the breast clinic. Cancer is often found by chance rather than symptoms.

    I'm keeping my fingers crossed for you on Tuesday.

    Kind regards,

    Jolamine xx

  • Thank you Jolamine ,

    i will keep in touch and let you know how I get on . 

    Thanks again xxxxx

  • hi Big Jean

     

    just checking in to see how you are?

     

    WL

  • Hi WL , 

    sorry haven’t been on in a while . Had meeting with dr last week for results and was delighted all scans came back clear . Huge relief , my husband and I actually cried with relief that it hadn’t spread . 

    I have to meet with the oncologist in a couple of weeks then will start chemo for 4-6 months , then surgery after that . 

    Hipe all going well with you . Thanks so much for getting in touch I really appreciate it . Talk soon 

    Xxxxxxx

  • hi Big Jean

    Thats the best possible news, I’m so pleased it hasn’t spread. I know what that sense of relief feels like. 

    i had a meeting with the oncologist today; when they did my scans they picked up I had an inflamed appendix, so have referred me to have it looked at before I start chemo.  So not a great start as I was mentally geared up to start chemo in the next couple of weeks, but it’s the right thing to do. So another two weeks wait.

    Sounds like we are on similar treatment paths, it would be good to keep connected throughout our journeys.

     

    take care 

    WL

     

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    Hi BigJean,

    This is great news. I'm not at all surprized that it drove both you and your hubby to tears.

    You're now ready to move on to treatment and, will feel better once you start that and, feel that you are beginning to move forward.

    Don't forget to keep in touch as you move along your cancer journey.

    We are always here for you.

    Kind regards,

    Jolamine xx

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    Hi BigJean,

    This is great news. I'm not at all surprized that it drove both you and your hubby to tears.

    You're now ready to move on to treatment and, will feel better once you start that and, feel that you are beginning to move forward.

    Don't forget to keep in touch as you move along your cancer journey.

    We are always here for you.

    Kind regards,

    Jolamine xx

Children
  • Hi Jolamine, 

    it was a huge relief to get that news as we were expecting the worst . 

    I’m so grateful for everyone’s kind words and advice .

    i just want to get started now as I’m ready to fight and face what’s ahead of me . 

     

    Will keep in touch . 

    Talk soon xxxxx

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    Hi BigJean,

    I am so glad that things weren't as bad as you suspected and, can understand your need to get on with treatment now as soon as possible.

    I sincerely hope that it all goes well.

    Kind regards,

    Jolamine xx

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    Hi everyone,

    i forgot to mention that I have been told I have to go on Herceptin every 3 weeks . Didnt really ask anything about it was just given a leaflet about it ! Does anyone have any advice on this ??

    thank you all so much . Xx

  • Hi there,

    I'm on Herceptin and Perjeta every 3 weeks for 10 years.  At the moment it's given with my chemo but once chemo stops I'll still be going in every 3 weeks.

    I am allergic to it so am given an IV antihistamine too but hopefully you won't be allergic anyway.  Nothing really to advise you, I get no side effects from the H or P, my mum was on Herceptin too and she never had any side effects from it.

    They'll monitor your heart closely as it can cause damage to your heart.  One way to help protect against that or minimise it is to follow the usual rules for improving your 'ejection fraction', you can Google these.  They include obvious things like cardio exercise and monitoring your sodium intake (and, therefore, fluid retention).  But obviously speak to your oncologist before starting or changing anything.

    LJx

  • Hi thanks for getting back to me . It was the nurse that told me I would be going on it . She just gave me a leaflet and said I would be on it every 3 weeks with chemo . 

    Bit worried now as there are heart problems on my Dads side of the family . 

    I’ll say this to the oncologist when I see him on Thursday. 

    Thanks for your advice 

    xxx

  • Twintwo, I was thinking I hadn't seen you and you pop up! How are things going? 

    I had chemo 4 yesterday so feeling a bit grotty now. Was told I will be starting herceptin after chemo finishes, but hadn't realised I will be kept in for 6 hours incase of any reactions , then on the next one it will be 2 hours then all being well the others will be a 5 min job... I was also relieved to read you and your mum were ok on it...fingers crossed I will be xxxxx