Hi Peter no problem any questions please  ask either me or someone will get back to yiu

good luck 

hazel

Hi there H,

i was scanning messsges & read yours & has made me feel stronger with a smile. I had my first day of Chemo & Radiotherapy today  for my throat cancer. I have to say I have been strong but somtims I think it’s a brave face for my wonderful husband & my awesome son (15) but today I had a wobble & I am lay next to my husband & having a good cry but reading your message stopped me & made me smile. Thank you H

Hi 6 G

wobbles are perfectly acceptable also screaming silently and crying on the kitchen floor at 0200 in the morning. Lol

you say  throat is it tonsil? if so  welcome to the small  world of females with basically a male cancer let me know if you feel you can or send s private  friend request 

good luck day 2 is shorter than day 1

Hazel x

Hi Hazel, 

thanks for your kind words, I have the *** in base of tongue & in both glands/lymph nodes so had fed peg fitted just under 2 weeks ago & have got to grips with that but not needed yet

Deb x

Hi Deb

i didn’t face the peg as they thought I would maintain swallow but had to agree to nasal tube if needed and bit I needed it about week 4 fir 6 weeks. It’s tgere to be used when needed in meanwhile try n eat as much as u can and keep hydrated by whatever means you can hydration is the key to it all. If u a wimp can do it anyone can. Have you read my blog ?

www.radioactiveraz.wordpress.com

onwsrd and upward to infinity and beyond 

h x

Hi this is Hazel  I am  11month post radiotherapy for tonsil cancer with all clear given in January. Mine was h p v 16 + positive and numbers were T2N2NM I have a blog detailing my experience 

www.radioactiveraz.wordpress.com

pop by give it a read. With it being a blog the most recent post is first so scroll down to see the start. There are also links to other sites 

hope this helps any questions just ask 

hazel

HI Raz, 

I must have been in treatment whilst you were, in the same Hospital and from the same area (I’m from Barnsley but live in Huddersfield).

I finished treatment end of Nov 18. Dry mouth persists but that xytol (or whatever it’s called) sugar free gum seems to help. Just be careful with Bioextra products as lengthy use can strip the enamel from your teeth. Get the Colgate mouthwash prescribed instead.

Still having trouble with quite a lot of food but slow cooker is great. Braised beef mash & veg is my favourite. 

Sometimes have an afternoon nap, but then again I did before getting cancer as I’m my own boss and can do what I like!

Things slowly improving, hoping they are better 2 years post end of treatment but got a year and  4 months to wait for that.

Mark x

Hi mark 

my treatment finished the 31 August I saw oncologist  twice in uni September then once October once December pet ct scan  4 jan result s day 14 January. I am under ent and back in January as oncologist wants to see me every January for next 5 years .last Saturday I did a sponsored bike ride for head and neck division raised £1200 do well pleased rode 60 km in pouring rain 

 .yes I agree slow cooked food is the way to go I like no it to food my mum used to cook plain and simple casseroles is the way to go. Ok the mouthwash I have tried the Colgate prescription one too harsh for my mouth I see dentist every 3 months and Shen gives me a good check up will mention the enamel.my gu,s have receded due to radiotherapy and the dentine atbthe bottom is showing but told all ok so far. 

I worked in barnsley for 21 years now live on birder south York’s west yorks nearer to pontefefract .small world. 

I had acupuncture on Wednesday trying to kicknsaliva glands into action also still use xylitol gum water and half an xymelts at night.

good luck keep in touch H would ask who your dr was but we can’t name names on here

h 

Hi Raz,

Thanks for the update.

Good tip on the xylitol melts. I hadn’t heard of them but just ordered some. Thanks!

Well done with the charity activities, that’s great! I wish I had time to do something but at the moment I run my own business and it’s full on, maybe in future I can raise some money. I got the 100% all clear a couple of months ago and told it’s a cancer that doesn’t return. 

Be good if side effects are minimal after the two years. I can stand that, just hope it’s not going to be like this forever!

Mark x