Tonsil cancer radiotherapy

Hello Team

So sorry you’ve all had your struggles. I was about to celebrate twenty years clear of breast cancer when I was diagnosed.....

I've just had my cancerous tonsil removed but whilst looks contained there is not room for 5mm clearance margin and it was at the top of my tonsil. No results yet but scans for spread looked clear at time of surgery although unreported. 

I have two two teenage children in the midst of exams  and have not told them yet. Am waiting for more information but they are my greatest concern. 

I also wondered how small the radiotherapy field can be or is or is it a blanket dose to entire left side of neck even if nodes not involved? Is chemo likely? 

 

thank you

Parents
  • Hi Jane and Cotswold boys

    H

    This is Hazel welcome to the club no one really wants to join  I am 28 weeks post radiotherapy for hpv16+ tonsil cancer right one plus several lymph nodes. 

    Radiotherapy  is very targeted  Rnow days to within mm of targeted area I had spread to soft palate and anterior wall I got the all,clear in 14 January treatment is hard no use beating about the bush but if I can do it as a 62 years old wimp who cries I’d i broke a nail it’s doable. Recovery is also hard but the end result is worth ut 

    I have written a blog when u feel strong enough pop by and give it a read.

    www.radioactiveraz.wordpress.com

    There are several of us on here who will give any help we can on my blog there’s a link to Anchor  1707 who who also has a thread on here under living with cancer Radiotherapy for throat cancer

    ask any questions and good luck .

    ps am writing this from southern Spain were ive just done a Nike ride amen yestetday walked up a 1000 foot mountain and back .so dontvreally dispair . I didn’t have a peg some do some don’t take notice of your oncologist they know nowhere best 

     

    regards 

    hazel 

Reply
  • Hi Jane and Cotswold boys

    H

    This is Hazel welcome to the club no one really wants to join  I am 28 weeks post radiotherapy for hpv16+ tonsil cancer right one plus several lymph nodes. 

    Radiotherapy  is very targeted  Rnow days to within mm of targeted area I had spread to soft palate and anterior wall I got the all,clear in 14 January treatment is hard no use beating about the bush but if I can do it as a 62 years old wimp who cries I’d i broke a nail it’s doable. Recovery is also hard but the end result is worth ut 

    I have written a blog when u feel strong enough pop by and give it a read.

    www.radioactiveraz.wordpress.com

    There are several of us on here who will give any help we can on my blog there’s a link to Anchor  1707 who who also has a thread on here under living with cancer Radiotherapy for throat cancer

    ask any questions and good luck .

    ps am writing this from southern Spain were ive just done a Nike ride amen yestetday walked up a 1000 foot mountain and back .so dontvreally dispair . I didn’t have a peg some do some don’t take notice of your oncologist they know nowhere best 

     

    regards 

    hazel 

Children
  • Hi there H,

    i was scanning messsges & read yours & has made me feel stronger with a smile. I had my first day of Chemo & Radiotherapy today  for my throat cancer. I have to say I have been strong but somtims I think it’s a brave face for my wonderful husband & my awesome son (15) but today I had a wobble & I am lay next to my husband & having a good cry but reading your message stopped me & made me smile. Thank you H

  • Hi 6 G

    wobbles are perfectly acceptable also screaming silently and crying on the kitchen floor at 0200 in the morning. Lol

    you say  throat is it tonsil? if so  welcome to the small  world of females with basically a male cancer let me know if you feel you can or send s private  friend request 

    good luck day 2 is shorter than day 1

    Hazel x

  • Hi Hazel, 

    thanks for your kind words, I have the *** in base of tongue & in both glands/lymph nodes so had fed peg fitted just under 2 weeks ago & have got to grips with that but not needed yet

    Deb x

  • Hi Deb

    i didn’t face the peg as they thought I would maintain swallow but had to agree to nasal tube if needed and bit I needed it about week 4 fir 6 weeks. It’s tgere to be used when needed in meanwhile try n eat as much as u can and keep hydrated by whatever means you can hydration is the key to it all. If u a wimp can do it anyone can. Have you read my blog ?

    www.radioactiveraz.wordpress.com

    onwsrd and upward to infinity and beyond 

    h x