Incurable prostate cancer

Hello All

My dear husband has just been told he has incurable prostate cancer.

Background. Aged 61 - healthy on no meds but a little overweight. Father died of prostate cancer 35 years ago.

Becasue of family history had a PSA every year. The last one in March this year  came back 5.6 went back a few weeks later for another at 5.9 so GP thought all ok but sent him for an MRI scan to be sure (thank you GP) . Scan then went to biopsy and told cancer with  a gleeson score 9  of 4+5 and very aggressive.

Then had PET scan which shows spread to lymph and small area of bone in pelvis. What we had hoped was curable is not. We are devastated and terrified as we thought having a test every year woud mean if it did start to develop it would be early days and easily curable. .

Husband already started hormone tablets and then will have  hormone injections (for rest of life) and chemo. They have called it triple therapy and said they will hit it hard.

We have not dared ask for a prognosis. They looked so grave when they told us and did not say anything positive except they would hit it hard.  I did google  ( i know I shouldnt) and some articles say 3 years...

The articles talk about dealing with bone pain etc - my husband has no symptoms and it is hard to understand how it is so advanced. 

I have seen some stories of people living much longer even when deemed incurable. . Can anyone give us any hope/advice please.

Thank you

Parents
  • Hi vww my partner who is 66  has just been diagnosed with prostate cancer and has no symptoms, he is very active, only drinks in moderation, his was found by a routine blood test so was unexpected his Gleeson score is 9 and his psa are 113, he has had a bone scan and mri but because they came back clear which was a relief to us, not so much for the consultant as he thinks that it may be hidden in lymph nodes because of his high readings he has been referred for a pet scan, like you I started to google which i shouldn't have done either because the information out there is mind blowing, I think as the other half its so hard to watch them going through this, I have cried buckets and gone through the angry stage, like you his dad has it but he hasn't had any treatment and is the ripe old age of 95, I think the only advice and hope we can have is live each day has it comes and treasure what we have which is easy said than done, I have sent a link about anticipatory grief  https://share.google/SrdZlqq2XWs48bdRn  (hope it opens I'm not very high tech) which helped me to understand my feelings and reactions, so hopefully it might help you take care and if you need to chat please do x

Reply
  • Hi vww my partner who is 66  has just been diagnosed with prostate cancer and has no symptoms, he is very active, only drinks in moderation, his was found by a routine blood test so was unexpected his Gleeson score is 9 and his psa are 113, he has had a bone scan and mri but because they came back clear which was a relief to us, not so much for the consultant as he thinks that it may be hidden in lymph nodes because of his high readings he has been referred for a pet scan, like you I started to google which i shouldn't have done either because the information out there is mind blowing, I think as the other half its so hard to watch them going through this, I have cried buckets and gone through the angry stage, like you his dad has it but he hasn't had any treatment and is the ripe old age of 95, I think the only advice and hope we can have is live each day has it comes and treasure what we have which is easy said than done, I have sent a link about anticipatory grief  https://share.google/SrdZlqq2XWs48bdRn  (hope it opens I'm not very high tech) which helped me to understand my feelings and reactions, so hopefully it might help you take care and if you need to chat please do x

Children
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