Incurable prostate cancer

Hello All

My dear husband has just been told he has incurable prostate cancer.

Background. Aged 61 - healthy on no meds but a little overweight. Father died of prostate cancer 35 years ago.

Becasue of family history had a PSA every year. The last one in March this year  came back 5.6 went back a few weeks later for another at 5.9 so GP thought all ok but sent him for an MRI scan to be sure (thank you GP) . Scan then went to biopsy and told cancer with  a gleeson score 9  of 4+5 and very aggressive.

Then had PET scan which shows spread to lymph and small area of bone in pelvis. What we had hoped was curable is not. We are devastated and terrified as we thought having a test every year woud mean if it did start to develop it would be early days and easily curable. .

Husband already started hormone tablets and then will have  hormone injections (for rest of life) and chemo. They have called it triple therapy and said they will hit it hard.

We have not dared ask for a prognosis. They looked so grave when they told us and did not say anything positive except they would hit it hard.  I did google  ( i know I shouldnt) and some articles say 3 years...

The articles talk about dealing with bone pain etc - my husband has no symptoms and it is hard to understand how it is so advanced. 

I have seen some stories of people living much longer even when deemed incurable. . Can anyone give us any hope/advice please.

Thank you

  • Hello VWW

    I'm sorry to hear that your husband has recently been diagnosed with incurable prostate cancer. It's understandable that this news has been overwhelming and that you're both feeling so concerned about what this may mean for the future. 

    It's good to hear that the team are offering him some treatment. Hopefully, he will have a positive response to this. 

    We know that many people turn to the internet after being diagnosed with cancer. Unfortunately, a lot of what people find leaves them with more questions, concerns and worries than before. Try to stick to reliable science-based organisations such as Cancer Research UK and Prostate Cancer UK if you're looking for information. It will also help to remember that everyone's journey is different, so when you're looking at statistics, bear in mind that those may not necessarily mean the same for your husband. 

    Prostate Cancer UK has a service where you can talk with volunteers who have had a prostate cancer diagnosis, and I know some of the men who have posted here previously have said they've found it helpful to talk with other men who have been on that same path. You are also both welcome to talk with one of our nurses if you think it may be helpful. I know they will be happy to listen and offer any advice, information and support they can. They're available Monday to Friday, 9am to 5pm on 0808 800 4040. 

    Keep in touch, VWW, and let us know how you both get on. We're here for you. 

    Best wishes, 
    Jenn
    Cancer Chat moderator