Hi Annette79, 

What a devastating blow it must have been for you to find this out especially when everything was going so well. At least the lesion on the spine was being monitored and you did well to flag this pain in your side and to mention that you felt this thing on your spine was getting bigger but I am so sorry that the MRI flagged that it was malignant. You are having to adjust to so many changes all of a sudden as well as your medication changing and it must be so hard for you to feel that they won't be ringing the bell just yet. You are indeed very young and the news must have been upsetting and I hope that these mets were caught early and that the new medication and treatment will be effective. 

If you feel you are struggling with how you are feeling emotionally at the moment, get in touch with your GP and mention the impact this is having on your mental health. Your doctor will be able to guide you and will have suggestions that may help you feel emotionally better. It's completely understandable that you felt like this and cried and it's normal to feel scared as there is still a lot of uncertainty ahead and if at any point you would like to talk to one of our cancer nurses, you can contact them on this free number 0808 800 4040 - their helpline is open Monday to Friday from 9am to 5pm. 

I have also slightly changed the title of your thread to include more information about your current situation. This will hopefully allow other members who may have had the same diagnosis as you to spot your thread more easily and respond with their own experiences. 

You are not alone here on Cancer Chat and I will now let other members of our community come and say hello and share their stories with you. 

Best wishes, 

Lucie, Cancer Chat Moderator

Thank you for responding. I am at a loss. I came off here as I couldn’t handle it anymore but now I feel so desperate for help and advice or anyone that can help me. I am so scared for the future it’s terrifying. Xx

Hi Lisa 

yea I am here again. So sad I am devastated. Hope your doing well xx

Hi Annette I am so sorry to hear about your diagnosis.  It must feel terrifying for you.  I know what you mean about not ringing the bell.  Like you I have metastatic breast cancer with tumors (bone mets) in pelvis, spine, ribs and skull.   I was diagnosed with breast cancer at 47 and now 12 years later it has raised its ugly head again.  I am on Ribociclib , Denosumab and Exemastane along with Tramadol and cyclizine.  This will be for life or until it stops working and then they will change to something else.  I am currently on my sixth cycle and to be honest the side effects havent been too bad.  You still have a life in front of you (a different life) but still a life.  You might want to join the Macmillan forum, there is one for breast cancer and one for incurable cancer - patients only.  Also the Macmillan nurses are brilliant.  It would be good if you could talk to someone to get some help with your emotions.  I had counselling that Macmillan arranged for me and it helped.  It also helps me tremendously to talk to people on the forums who understand (we are all on the journey at different stages). even writing things on the forum makes me feel better.  Sorry for rambling I just wanted you to know that you are not alone and there is help out there.  Please keep in touch.

Lee x

Hi lee

I am so sorry to hear this. Life can be so unfair. I am on injections too and same medication as you. I have just had another MRI as I had a pain in my side for sometime but was told it was a strain. I just hope it hasn’t spread anywhere else. 

thanks for messaging and yes I will keep in touch. You take care 

love Annette