Stage 1b Melanoma

Hi, I’ve just been diagnosed with a stage 1B melanoma, which  was on my upper arm.  I’ve read around the subject, and I have an appointment to see a consultant next week with a view to discussing wider local decision and sentinel node biopsy. I don’t know whether to feel alarmed the speed at which things are happening or reassured that I am “ In the system” and tackling the problem promptly.  At the back of my mind is the thought that they are rushing me through because it’s urgent. Until now, the process has been relatively slow. I went to my local surgery in late June and only received the local excision in October. Four weeks then until the result came through this week.

Is anybody else In a similar situation to me?

Parents
  • Caroline, I know exactly how you feel, especially with the time lapse between getting a GP appointment to refer you and the excisional biopsy of your melanoma. I personally have found the entire process very slow, so I understand your concerns. I too have a stage 1 Melanoma [1A] invasive. Original biopsy 11 October, 16 weeks after seeking help. My wide excisional procedure required is not until 3 January 2025. Like you, this worries me, well the entire situation worries me, with so many of us being diagnosed with cancer. I am pleased you have an appointment next week to discuss your treatment plan in more detail. Try to think about what you want to ask, I didn't do this, and am having to do this now. Have you seen your pathology report? Not sure if you were seen at a specific cancer hospital. Did they check your lymph nodes at your first consultation to begin the diagnosis journey? I asked to see my pathology report, and although I did not understand all of it, margins, numbers, clark level etc, what I did gleam from it, was a better understanding to ask more questions, invasive remarks, prompted questions I would not have thought of. I don't know about you, but I was so focused on the fact I had cancer and terrified of what I may be told, I couldn't think of questions to ask at the time, I was simply nodding and in shock. So please, before you go to see your consultant this week think about what you want to know, ask and IF it helps write them down. This is very frightening time which does not help us to be as clear headed as we would like. Keep me posted and all the very best to you. 

  • Thank you so much for your reply.  It does help to know that someone else is in the same situation.
     I actually had three suspicious looking moles, and of the three, the doctor was convinced that one was a basal cell carcinoma, as it was flesh coloured.  That was the one that turned out to be the melanoma.  So far, I’ve only seen a dermatologist, but on Thursday, I am seeing a plastic surgeon.  I live in N Wales, and my nearest major hospital is 40 miles away.  The consultant I am seeing on Thursday is in N W England, although he is holding a clinic in my local hospital in Wales.  I will have to travel 80 miles for the surgery though.
    The specialist nurse who gave me the results this week did give me quite a thorough examination, including the lymph nodes.
    i haven’t seen my pathology report, but it’s a good idea to request a copy.  At the moment, I almost don’t want to know, but there’s no hiding from the facts, and as you say, it gives you a good basis for asking for clarification.  
    i will keep in touch to let you know how I get on.  Good luck with your procedure in January.  The waiting is almost unbearable, but it will be December tomorrow, which makes it feel closer.

    Do keep me posted about your own treatment too.  All the very best for 3 January.

  • Please try not to worry if you can. Stay as positive as you can. I was like you, constantly reading and educating myself on all eventualities. Understanding the situation does actually help. I also visit Melanoma.org.au .along with Melanomafocus.org which is full of tactual information and so well explained. 
    Niw to give you something else to think about!!  I’ve read that it’s VITAL to have what’s called a HEALTHY GUT.  We are advices to eat high fibre foods, seeds, blueberries, avocados, NI WHITE BREAD OR RICE. Change to good quality foods and buy organic when possible. It makes good sense really. We are what we eat! I take probiotics in the form of drinks and yoghurt. 
    I did masses of research about having immunotherapy treatment and found that there are certain medications that shouldn’t be taken when or before having treatment. Antibiotics are the first and Omeprazole ( protein inhibitors) I had been taking it for years as I suffered bad reflux.  Not taking Pepto Anuseed liquid which I only require occasional. Google antibiotics and immunotherapy as better explained online. Another one is BETA BLOCKERS.  My GP wasn’t aware of these drugs and their affect on the treatment. Lift your mind by educating yourself and making changes to your diet. We all need bacteria in our guts to keep the system working perfectly. 
    start believing that you’ll be fine. Help your body to help the fight. Enjoy Christmas with your friends and family and put all of this out of your mind if you can. Dress up and look your best. Treat yourself to something that’ll make you happy. Embrace life and stay positive. 
    All the very best. X

  • Hi Caroline,

    I've sent you a friend request so that, if you want to ask/chat about melanoma we can do so by private message. Grannyrose has given you two great melanoma resources to look at - I especially suggest Melanoma Focus as they also have a Melanoma Nurse Helpline that can be rung if you need any answers from clinicians about your treatment etc.

    Take care,

    Angie

  • Thanks Angie.  I'm happy to communicate by private message, but not sure how it works, as I'm new to this forum.  Where do I see your request?   ️

  • Great advice, GrannyRose.  I actually joined Zoe Nutrition 2 years ago, and have changed a lot of things about the way I eat.  Radically cut down on Ultra Processed Foods, loads more fibre, and I eat many more nuts, seeds and plant-based meals, although I still eat fish and meat, just not as often. Also lots of fermented foods to help the gut.  Hopefully that has put me in a good place health-wise, although Christmas is always difficult to navigate healthily!

    Thanks also for the website references.  I'll definitely have a good look at those.

    Caroline ️

  • Hi Caroline,

    In the top right corner of your screen you will see a bell icon. That should have a number against it to tell you that there is a notification waiting for you. Click on the bell & you can open the request & click to accept it.

  • Sorry, Angie, I can’t see a bell icon on my screen. I’m not ignoring your request, but I’ll keep trying.  

  • Right, I’ve found the bell icon in the drop-down menu, but it says there are no notifications, so maybe it takes a while to filter through.  

  • Hit "view all" as it sometimes seems to mark things as read when you've only accidentally hovered over it.

  • Tried that and it’s just bringing me back to this thread.

  • Unfortunately, I’m  getting nowhere trying to find your request to me, so I’ve tried to reverse the process by sending a friend request to you. Let’s hope that works!

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