Hi Sorry I made a typo. HPV driven tumours respond very very well to treatment. I was HPV 16+ so it’s not a bad thing. It is a good thing they do respond to treatment as I’ve just said sorry about the earlier typo, I couldn’t correct it. It’s got an auto correct on it nowadays if you want any more info just send me a message. Don’t be afraid treatments hard, but if I can do it anyone can and we have with HPV and 93% complete response rate. hugs Hszel dx
Hi I had a biopsy but didn’t take tonsi out. Different trusts are different policies with regarding removal of tonsils they came out on the radiotherapy melted mine along with my Ohelo, which is a dangling bit at the back of your throat. How am I doing? I’m doing fine. I’m six years past treatment. I do everything that I did before and only thing that I can’t do is I can’t eat anything spicy and I don’t drink alcohol my mouth just kind of tolerate wine, et cetera. I am the exception on that one most people to get a taste back that they can have the odd or drink. my oncologist said he was going to take me as low as it possibly could and it was right that one. He also said he would cure me and he was tight that one. I can’t lie treatment is hard but as I said before, if I can do it anyone can and I was a wimp.i gad 35 radiotherapy snd 2 of s planned 3 chemo. Best advice i so I can give you is take whatever medication they give you if they offer you a peg feeding tube take it if not you could be like I was and I had an NG tube week three of treatment and I took it out of recovery and until you can’t swallow as much as a sick of water is hard to comprehend some get through without having a feeding tube but it’s very few and far between.
Dont fear the treatment we’re lucky in a way our cancers are eminently curable. I was at Leeds cancer dented where are you ? Xx
I'm in Maidstone kent and thank you for advice it's really encouraging. Taking one day at time .how did you find out you had cancer I just found a lump in my neck thought it gland no pain no symptoms at all xx
Hi the same I was in Spain cycling was fir don’t smoke don’t drink I lump in my collarbone area appeared I thought I had pulled a muscle umm how wrong was I fat forward 8; weeks aprox when we came home a firms suggested I see the g p. I did and 5 mins later was in teh 14 day cancer pathway. I was diagnosed 6 June 2018;treatment started 14 July 2018 finished 31 augustb2018. But I flew to Spain 25 October 2018 hard but I did it. I’m a glass half full I’m very positive I was positive it wasn’t going to get me. I now do lots of chairing work promoting the HPV vaccine and working with a cancer charity details in my blog. Hazle
