Oncologist appointment tomorrow - what questions should I ask?

After being diagnosed on 18th January and going through all the various test, I finally get to see the oncologist tomorrow. Would like to hear from anyone who has any suggestions about what questions would be good to ask. 

Also what are your experiences of how long it took for treatment to start after first oncology appointment. As my breast cancer is grade 3 and fast growing, I'm worried about it spreading, before my treatment even gets started. 

Was it suggested you have a PICC line or port?

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  • Hi everyone, just thought I'd give you an update, as I had my post op assessment today. It was the best possible news I could have had. They took 20 lymph nodes out, none of which had cancer showing. There was no sign of either tumour and no cancer cells in any of the breast tissue. They still want me to have radiotherapy as a precautionary measure and to reduce the risk of cancer coming back. Hope you are all OK. Xx

  • Hi    That's amazing news!  Well done you!  Radiotherapy will be a breeze after everything you've been through.  Do you know how many sessions you will need? 

    All good here thanks.  Had a poorly pup for a couple of days but she seems to be much better today.  My last immunotherapy session is scheduled for 21 November - all being well (e.g. bloods are ok and they can find a vein for treatment!) I will be ringing that bell!  

    I'm meeting up with the "Moving Forward" ladies on Monday evening for dinner and a catch-up.  I'm looking forward to that.  Am also out to dinner tonight lol. Thank goodness for my PT to help me work it all off!  He's gradually increasing what I do and I am definitely feeling better for it.  Yesterday he introduced light weights and I found out I couldn't quite straighten my left arm directly in front of me!  That was a new one lol.  So I'm working on that in between sessions too. 

    Hope everyone is doing well.  

    Carol xx

  • Thank you.  I've got a Muga scan tomorrow.  I really should have started my chemo on the 1st November but my referral for the Muga scan seemed to have gone astray between hospitals but I can't complain because I only saw the Oncologist on the 18th October. I'm having my pic fitted on Tuesday and face to face meeting with Oncologist Wednesday.  Just a bit worried at the moment because I am having a lot of pain in the boob and under the arm.  Boob has been very swollen /hard and has been very uncomfortable since my first appointment with Nurse at my GPs.  Ive had a CT scan too - nothing had spread to my lungs for liver.  Unfortunately we have a funeral on Thursday and fingers crossed Chemo will start on Friday.  Not looking forward to it  but just want rid if this.  Busy busy week.  Xx

  • I did got boob pain also, a couple of weeks after my biopsies. Good to hear that your ct scan showed no spread, that is a big relief. I opted for a port instead of a PICC line, only because I didn't want to have to go and get it flushed every week. You will get used to having lots of appointments. I have 2 this week, one for a wound dressing and one with oncology. Hope your week goes well, take care. Xx

  • Hi Carol

    i see you experienced poor mobility.  Was this the result of medication or just knock in effect of chemotherapy.  
    everyone responds so differently it can be confusing.  

    im pleased you found the course helpful and an ongoing support network.  I'm struggling emotionally so really looking forward to support around that 

    xx

  • Hi Pippin 24 I have been following all you ladies on here from the very start of your journey's. I was diagnosed in March. I started my chemotherapy end of May finished that and just had my surgery yesterday got discharged the same day also got a drain too. 

    How long did your drain stay in for? 

    I am not liking it at all. 

  • Hi Nedb, sorry to hear about your diagnosis in March. It's great that you have finished chemo and had your surgery, hope you are feeling OK. My recent surgery was mastectomy with diep flap reconstruction and I was in hospital 5 days. I only had one drain, which was removed three days after my surgery, so before leaving the hospital. I know others have had drains in for longer, I think it depends on how much fluid is draining, I'm assuming you have to measure it. If you have any other questions, feel free to ask. Take care. Xx

  • Offline in reply to Pippin24 Unpublished Reply

    Mine is less than 50ml yesterday it was 22ml in the morning it was 20ml and will see what it is the evening. It's only been one day yet. Yeah my husband measures it and we have to write it down on the paper the hospital gave us and date and time it also. 

  • Yeah it has to be less than 50ml yesterday it was 22ml today in the morning it was 20ml and in the evening need to see what that will be. You have to date, time and measure it and record it on the paper hospital gave. Don't like it at all can't sleep with it it always in the way of anything you are doing. Going to the bathroom is a mission. 

  • Hi pippin24 mine  has so far been below 50ml but it's only been 1 day yet. 

  • Offline in reply to Pippin24 Unpublished Reply

    Mine has been below 50ml and it's been only 1 day so don't know how long they will keep it in for.

  • Mine has been below 50ml but it's only been 1 day so don't know how long it will be in for 

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