Hi everyone, hope you all had a good weekend. The saga of the phesgo injection before surgery  continues. I spoke to chemo unit last week, who agreed with macmillan nurses, who say I can't have it a week before surgery. Had oncology phone call with the registrar this morning, who said it's fine to have it. I explained that I've been told that I shouldn't have it, she said she'll check it out with the consultant, and call when I'm back off holiday. This is starting to make me feel anxious, as I don't want to do the wrong thing. I am going to my pre op assessment this afternoon, so will explain to them how it's making me anxious. If they can't help, I might pop into the breast clinic and ask if I can speak to a BCN. Would be nice to hear how you are all doing. Xx

Oh gosh Pippin, how frustrating. It's very strange that youre getting two totally different opinions, i'm not surprised you're feeling a little anxious. when do you go on hols?...and remind me what date your operation is again?

Really hope the pre op assessment goes ok this afternoon and you get some clarification.

All ok here thanks. My in laws arrived from Canada yesterday, they are here for 3 weeks!!!...otherwise all good, I have an oncology appt tomorrow, hopefully i can get my port removed soon and book in the CT scan and Dexa scan but otherwise think it's just cracking on with daily pills and monthly injections for the forseeable! But i'm feeling good at the moment..other than a few hot flushes and some night sweats so far all ok.

Hope you have a fab, fab hols and that things get resolved or  that you at least hvae some peace of mind as far as Phesgo injections go. How often are you supposed to have those?

Keep us posted..

how is everyone else doing??

xx

Oh gosh Pippin, how frustrating. It's very strange that youre getting two totally different opinions, i'm not surprised you're feeling a little anxious. when do you go on hols?...and remind me what date your operation is again?

Really hope the pre op assessment goes ok this afternoon and you get some clarification.

All ok here thanks. My in laws arrived from Canada yesterday, they are here for 3 weeks!!!...otherwise all good, I have an oncology appt tomorrow, hopefully i can get my port removed soon and book in the CT scan and Dexa scan but otherwise think it's just cracking on with daily pills and monthly injections for the forseeable! But i'm feeling good at the moment..other than a few hot flushes and some night sweats so far all ok.

Hope you have a fab, fab hols and that things get resolved or  that you at least hvae some peace of mind as far as Phesgo injections go. How often are you supposed to have those?

Keep us posted..

how is everyone else doing??

xx

Hi Greeny80, off on holiday early  Thursday morning and come back on the 29th, really can't wait to get away. Mentioned at my pre op assessment my anxiety about the phesgo injection. She was great and is going to email surgeons to clarify, which I'm really pleased about. Lovely that you are having family visit from Canada. 3 weeks is a long time, so try not to over do it. Will be good to get your port removed, I've been wondering about this myself. Not sure if they'll leave it, while I'm on zoledronic infusions, although they're only every 6 months. Hopefully you won't have too long to wait for your scans. I finally got results of my ct lung scan, nodules are stable. Pleased that you're feeling good at the moment, although the hot flushes can be a bit of a nuisance. Phesgo injections are every 3 weeks, had it delivered today and hubby doing it for me tomorrow. .This will be the first one at home. Have a great time with your family when they visit. Xx

HI Greeny,

It's great to hear that you are doing ok at present. I hope that you enjoy your in-law's visit. Just be careful not to overdo things. You've got the ideal excuse for eating out more and taking things a little easier than usual.

Jolamine xx