Oncologist appointment tomorrow - what questions should I ask?

After being diagnosed on 18th January and going through all the various test, I finally get to see the oncologist tomorrow. Would like to hear from anyone who has any suggestions about what questions would be good to ask. 

Also what are your experiences of how long it took for treatment to start after first oncology appointment. As my breast cancer is grade 3 and fast growing, I'm worried about it spreading, before my treatment even gets started. 

Was it suggested you have a PICC line or port?

Parents
  • Hi, it's me again, meant to ask earlier about pre-op assessment. I know they'll want to know what meds I'm on, but wondered what other info they might want to know. It says the appointment is 60 minutes long. Xx

  • Hi. 
    Amy Dowden is on BBC1 and yes still available on IPlayer 

    I'd love to say 4 weeks post op you'll be ok but I'd be lying.   With my hysterectomy I was still very sore at this point.  Your be having abdominal surgery too to use your own tissue.  I've been told by my breast surgeon no lifting arms above head and no lifting anything for 8 weeks.  I'm 6 weeks in and only just feeling comfortable now.  Drains were in for first couple of weeks before any healing commenced.  

    Obviously we are all different and heal differently but maybe have a back up plan just in case.  We have tickets to David Gilmore in London 14 th October.  My surgeon told me 3 months for recovery so I have a back up plan for then even.  Just in case 

    I terms of pre op.  I had ECG.  Bloods.  Height. Weight.  Full health questions.  Screening for MRSA.  Shown how to empty and measure drains and fitted for surgical bra so did take at least an hour. 
    hope that helps 

    they asked about past surgeries.  Smoking.  Sleep.  Exercise. Mobility.  Health ailments.  Who is at home and can look after you.   My husband had had to do all cooking and get drinks as not able to lift kettle even.  

    they also took through what will happen on day 

    Have. you had other surgeries ?   I've had 4 surgeries prior to mastectomy. 

    anyhow good luck. You'll be fine 

    xxx 

Reply
  • Hi. 
    Amy Dowden is on BBC1 and yes still available on IPlayer 

    I'd love to say 4 weeks post op you'll be ok but I'd be lying.   With my hysterectomy I was still very sore at this point.  Your be having abdominal surgery too to use your own tissue.  I've been told by my breast surgeon no lifting arms above head and no lifting anything for 8 weeks.  I'm 6 weeks in and only just feeling comfortable now.  Drains were in for first couple of weeks before any healing commenced.  

    Obviously we are all different and heal differently but maybe have a back up plan just in case.  We have tickets to David Gilmore in London 14 th October.  My surgeon told me 3 months for recovery so I have a back up plan for then even.  Just in case 

    I terms of pre op.  I had ECG.  Bloods.  Height. Weight.  Full health questions.  Screening for MRSA.  Shown how to empty and measure drains and fitted for surgical bra so did take at least an hour. 
    hope that helps 

    they asked about past surgeries.  Smoking.  Sleep.  Exercise. Mobility.  Health ailments.  Who is at home and can look after you.   My husband had had to do all cooking and get drinks as not able to lift kettle even.  

    they also took through what will happen on day 

    Have. you had other surgeries ?   I've had 4 surgeries prior to mastectomy. 

    anyhow good luck. You'll be fine 

    xxx 

Children
  • Hi NGS, thank you so much for such an informative reply. The show we are supposed to be going to is in a theatre near were my daugter lives, so could park right outside. If I can't go, the rest of the family can, so it's not that much of an issue. Will definitely give the Amy Dowden programme a watch. I think the cooking is going to be interesting, hubby hasn't a clue lol! My son is pretty good  but wouldn't expect him to do it all the time, as he works. I can see us having take aways and ready meals for a while! I'll have to make a list of past surgeries, I've had about 7, one being a hysterectomy. I think this will be the hardest stage of treatment for me, but will just have to get through it. Thanks again for all the info, it's really helpful xx