Hi all, what a lovely day today, hope you're all doing something nice. So, I went to the hospital to get bloods done through my port today. They wouldn't do them through port as said it needs to be after 10 days and it's only 9. They had told me at last chemo session it would be fine, that guidelines had changed to 7 days. A bit annoying as I could have gone to a closer hospital to have bloods done in the normal way. On the plus side, I asked them to talk to pharmacist for me about what gp can prescibe for hot flushes, as I've had to stop hrt. They suggested a suitable medication which doesn't affect hormones (as I'm pr positive, er positive and HER2 positive). I have a phone consultation with gp this afternoon, so hopefully she can prescribe this for me. Although receptionist did ask if the hospital were sending a letter (which they're not), so hope this won't be a problem. Also have my oncology appointment this afternoon, to see if chemo can go ahead on Monday. Off out for a walk shortly and out with friends for dinner tonight, which I'm looking forward to. Hope you all have a lovely weekend. Xx

Hey,

Ah that's annoying they couldn't access your port for your bloods this week. Hopefully by Monday and then going forward it will work perfectly but sorry you had a slightly longer journey to make today. Let us know what the oncologist says later...fingers crossed for the go ahead on Monday!

That's great news that the pharmacy has suggested some medication for your hot flushes! Let us know how you get on with that...really hope it helps.

Sunshine is amazing today, makes such a difference doesn't it?! Just been out for a lovely dog walk too....definitely helps having chemo this time of year going into summer..definitely better for the headspace!

I'm feeling pretty good today, weird taste still but not nausea, a little light headed maybe but all totally manageble and had a much better night sleep now i'm off the steroids!....my body definitely prefers this TC combo...although there is part of me that is still frustrated that my body couldn't tolerate the EC...I can't help but worry i'm not having the best chemo or the strongest one but i know i have to get that out of my head...and know that i have the next best thing and that my body just didn't want the EC so i have to ust go with it...but it does play on my mind a little!

Have a lovely evening tonight and let us know if you're good to go for Monday! xx

How's everyone else doing?? Sending love and hope you're all ok! xx

Same here with the injections hun EC is what I am on next after the halfway point and there is no break in between. I am all for the surgery, we are done with having children and with being triple negative I am all for there being nothing there it can come back to and grow off as much as possible. I want to be avoding having to go through this again as long as possible. I need 10 years to get my youngest in to adulthood. They did say the test can take 6mths but they were fast tracking. All the cancer history in my close family has been the male side with my dad and 2 brothers.

 Pippin24  I saw the tummy tuck, is that what they are using for the reconstruction hun?

Hi MadhatterC, having weekly chemo for so long is really intense for you. At least going onto EC will give you a bit of a break in-between  It's the EC that's the red one, which I have just finished. I found it has been OK, with minimal side effects for me. Not sue how I'll be on the docetaxel, but I'm going to remain positive that this will be fine too. I Hope to keep up the morning walks with hubby, I'm sure this has helped my mindset. Annoying that you are having problems with your leg and that it's disturbing your sleep. Hope this starts to improve for you with the meds the dr has given you. Hopefully your genetic test results come through soon, you will then be sure of your treatment plan moving forward. Xx

Hi NGS, yes the tummy tuck is part of the reconstruction. The surgeon told me she'll take what she needs from the tummy to reconstruct my boob. She said she'll also make sure the other boob matches. We had this conversation when I was first diagnosed. It was then decided that my cancer was more invasive and I was HER2 positive, so would need chemo first. Hopefully, this won't change my surgery plan moving forward, will have to wait until I see the surgeon again. Hope you now get some relief from the bone pain and can enjoy your week. I'm looking forward to going out with friends at the weekend. Xx 

Hi, my niece did have the reconstruction at the same time. She did amazingly well, looking at her now, you could never know that she has been through this surgery. It is always worrying going through major surgery, which concerns me too. Xx

Yes, tummy tuck is for the reconstruction. Xx

I would be too hun, its a scary thought being put to sleep and recovery etc. 

If you need extra material hun I am here for you.

Thank you, it us good to share our journeys and experiences. Xx

Just noticed you asked about the port. They used it at my last chemo and it all worked well. Just wished they'd have put it in sooner, as had two chemo put through a canula. I do have a bruised feeling along a vein in my arm where first two chemo went. Not sure if this would gave caused this feeling or if anyone else has experienced this. Went to the nurse today as my stitches hadn't dissolved and she trimmed them for me. Asked her about the arm but she wasn't sure. She did say I'm down to receive a call from gp on Friday to see how I'm doing, so will ask her about it. Xx

Might be common mate, picc line arm felt like that for the first couple of goes, probably milder then a port I would image though. 

Might be common mate, picc line arm felt like that for the first couple of goes, probably milder then a port I would image though.