Oncologist appointment tomorrow - what questions should I ask?

After being diagnosed on 18th January and going through all the various test, I finally get to see the oncologist tomorrow. Would like to hear from anyone who has any suggestions about what questions would be good to ask. 

Also what are your experiences of how long it took for treatment to start after first oncology appointment. As my breast cancer is grade 3 and fast growing, I'm worried about it spreading, before my treatment even gets started. 

Was it suggested you have a PICC line or port?

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  • Having a stressful day today. Had my pre chemo consultation by phone today. Went well with lots of information given about what to expect.  However, I did forget to mention about some niggling breast pain I've been having. They come and go, sometimes slightly shooting pain. Did phone breast care nurses last week, who said probably due to all the biopsies I had. They were done a few weeks ago, so wondered if pains would only start happening in the last week. So annoyed with myself, even had it written down. I know I can mention on Monday, but will now have to go through two more days of stress!!

  • Hi Pippin 24, I think every little niggling pain is a worry when you're in the position that we are, try not to worry hopefully the chemotherapy will start to work killing all of the harmful cancer cells,  hope everything goes well for you on Monday,   I'm anxious at the moment waiting for my PET scan results on Friday the 8th xx

  • Thank you, will give you an update after treatment. Last one with canula hopefully, port due to be fitted before 3rd cycle. Xx

  • Good luck today.  Hope all goes well for you xxx 

  • Hi really pleased you e turned that corner. Hopefully some reprieve now before next round.  Did you find the cocodamol bunged you up.  I might try this as pain was so bad from injections. It’s definitely the injections causing me the anxiety 

    xx 

  • Good luck for today hun. Hope all goes well c

  • Thank you, just on my way to the hospital now. Xx

  • Offline in reply to MadhatterC Unpublished Reply

    Thank you, just on my way to the hospital now. Xx

  • Thinking of you today Pippin...Feeling positive for you. Rest up this week and look after yourself. Soon you'll be able to cross another round off!! Sending hugs xx 

  • Hi,

    Yes definitely no sickness thank god! Still the weird taste in my mouth and feel a little lightheaded at times but just trying to eat regularly and take daily walks etc all while entertaining my kids!!.

    I only took the co-codomol just once before each injection and i only needed 3 injections this time around as didn't have the full dose due to the weird allergy i had...so it hasn't had too bad an effect luckily. Sorry you've been in so much pain with them, have you got laxatives etc to take with the co-cocodomol?....

    I do need to physch myself up for the injections, weirdly today i've had some pain in my hip bone but who knows if that's related..my left arm also feels a bit heavy/weird...i think i just have to try not to think about it too much as otherwise i'm going to drive myself mad worrying about every sympton, pain, feeling!! do wonder what all these drugs are doing to my body though. I'm not very good at taking medication at the best of times and now my poor body has been hit by everything!!!  It's a lot isn't it!

    Thinking of you for the next round. Is yours tomorrow? How are you feeing? xx

  • Right my lovely, beautiful, inspirational warriors. I am getting my bag ready for my picc line and chemo tomorrow. (Sounds like i am there all day) What are you tips to take. I have reading books, ipads, headphones and power banks. Hand cream, mouth wash and bonjela, tissues, lip balm, and wet wipes. 

    What are we thinking for snacks, drinks etc and anything else I may have missed. I can't have cold cap as my chemo is weekly. 

  • Ah you're going to smash it!...Weirdly i was in there from 9am - 4pm and barely had time to read anything! Distracted by nurses coming and going, cold capping etc but going forward i would definitely say some magazines, maybe some crosswords or something...are you cold capping? It's quite hard to plug any headphones in if you are..boiled sweets can also help, they told me to suck on those. Lip balm also good, my lips and mouth have been very dry and then maybe just a nice snuggly scarf/pashmina just for a bit of comfort..I didn't have much of an appetite my first round but crackers, cheese and cucumber have been my cravings and salt and vinegar crisps! and also try to drink lots of water. 

    Really hope it goes welll. Are you having EC chemo? xx

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  • Ah you're going to smash it!...Weirdly i was in there from 9am - 4pm and barely had time to read anything! Distracted by nurses coming and going, cold capping etc but going forward i would definitely say some magazines, maybe some crosswords or something...are you cold capping? It's quite hard to plug any headphones in if you are..boiled sweets can also help, they told me to suck on those. Lip balm also good, my lips and mouth have been very dry and then maybe just a nice snuggly scarf/pashmina just for a bit of comfort..I didn't have much of an appetite my first round but crackers, cheese and cucumber have been my cravings and salt and vinegar crisps! and also try to drink lots of water. 

    Really hope it goes welll. Are you having EC chemo? xx

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